Indicatori PNS (1) - 2022 / Boli rare-cost mediu-AN 2022.xlsx

COST MEDIU boli rare L2 Programul naţional de diagnostic şi tratament pentru boli rare L3 Situaţia indicatorilor fizici realizaţi în perioada 01.01.2022-31.12.2022 L5 Lei L7 CAS Cost mediu/bolnav cu: L8 Boli neurologice degenerative/ inflamator-imune forme cronice Boli neurologice degenerative/ inflamator-imune forme acute Boala Fabry( circuit închis + circuit deschis) Boala Pompe Tirozinemie Mucopolizaharidoză tip II (sindromul Hunter) Mucopolizaharidoză tip I (sindromul Hurler) Afibrinogenemie congenitală Sindrom de imunodeficienţă primară HTPA Amiloidoză cu transtiretină: Scleroză sistemică şi ulcerele digitale evolutive Purpura trombocitopenică imună cronică( circuit închis + circuit deschis) Hiprerfenilalaninemie la bolnavii diagnosticaţi cu fenilcetonurie sau deficit de tetrahidrobiopterină (BH4) Scleroza tuberoasă Osteogeneză imperfectă Epidermoliză buloasă Atrofie musculară spinală( circuit închis + circuit deschis) Boala Castelman Mucopolizaharidoza Tip IVA Lipofuscinoza ceroida TIP 2 (TPP1) Sindrom hemolitic uremic atipic (SHUa) Hemoglobinurie paroxistică nocturnă(HPN) Mucoviscidoză copii Mucoviscidoză adulţi Scleroză laterală amiotrofică Sindrom Prader Willi fibroză pulmonară idiopatică distrofie musculară Duchenne angioedem ereditar Neuropatie optică ereditară Leber Limfangioleiomiomatoză L9 afectare neurologică afectare cardiacă sau formă mixtă medicamente materiale sanitare Total medicamente materiale sanitare Total bolnav adult / copil cu greutate > 40 Kg bolnav copil cu greutate < 40 Kg L10 C0 C1 C2 C3 C4 C5 C6 C7 C8 C9 C10 C11 C12 C13 C14 C15 C16 C17 C18 C19 C20 C21 C22 C23 C24 C25 C26 C27 C28 C29 C30 C31 C32 C33 C34 C35 C36 C37 C38 L11 Alba 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 352993.36000000004 0 0 0 0 0 0 236014.33 0 2154.9627272727271 0 37151.887499999997 0 713738.89500000002 233054 0 L12 Arad 0 0 442107.4 0 0 1239312.885 0 0 0 0 0 0 17252.23 62229.088333333326 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 432795.32 0 2691.5736363636365 0 72467.947142857141 1080862.74 579091.73 0 17838.759999999998 L13 Arges 0 0 506986.68 0 168274.8 1961927.16 0 0 0 0 0 0 0 23034.321250000001 0 0 0 0 0 0 0 0 661862.55000000005 0 0 0 0 0 0 19610.753333333334 6856.4288888888887 2496.2542857142857 0 33004.014999999999 0 238463.745 0 0 L14 Bacau 0 0 600509.56999999995 0 0 0 0 0 0 0 0 0 0 63380.72 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 40612.635000000002 106120.478 2911.77 0 61783.363749999997 0 756703.60499999998 0 0 L15 Bihor 79791.361176470586 57037.143999999993 0 0 0 0 682784.1 0 68887.347999999998 8837.1380000000008 0 0 0 50423.813750000001 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 156170.00777777779 168512.65 3485.4466666666667 0 87599.425000000003 1185847.76 102372.18666666666 0 0 L16 Bistrita-Nasaud 0 0 0 0 0 0 0 0 0 0 0 0 0 75029.568181818177 0 0 0 0 0 0 0 0 132372.51 0 0 0 0 0 0 0 16797 3520.9300000000003 0 31781.07 0 633159.5 0 0 L17 Botosani 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 529490.04 0 0 0 0 0 0 61340.759999999995 0 1023.90125 0 0 0 36194.199999999997 0 0 L18 Brasov 0 0 0 0 0 1263333.6666666667 0 0 86092.584999999992 0 0 0 0 32788.895714285711 0 140667.35999999999 0 0 0 0 0 0 264745.02 0 0 0 0 0 587124.82999999996 70537.376470588235 10959.79875 2732.848484848485 0 81252.996666666659 0 75496.899999999994 98686.67 0 L19 Braila 0 36197.366666666669 0 0 0 0 0 0 0 0 0 0 0 28416.292857142857 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 301771.53999999998 65993.48 3485.0970000000002 5959.23 48268.9375 2343144.12 0 0 0 L20 Buzau 0 0 0 0 0 0 0 0 82265.2 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 21383.18 0 3263.6407692307694 0 0 1802434.26 0 0 0 L21 Caras-Severin 0 0 0 1578222.95 0 0 0 0 0 0 0 0 0 58680.186666666668 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 3148.5853333333334 0 55578.394999999997 3242588.22 0 0 0 L22 Calarasi 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 160111.61499999999 0 1943.4799999999998 0 71031.149999999994 0 157116.60999999999 0 0 L23 Cluj 74132.177535897441 40687.658585714285 605870.78382500005 0 0 0 0 0 64638.767774363638 64553.745993826924 0 423507.380382 10985.923609999998 88637.520868537307 133596.05380371428 165319.32335999998 0 0 0 1121.7601950000001 26056.887062380949 27125.230105238097 734301.03868823533 252536.14394559999 0 0 0 0 0 109532.51571428571 236807.62142857144 2119.8832499999999 35001.96 56797.693469387756 0 63832.385000000002 19737.34 0 L24 Constanta 38080.315555555557 27510.510000000002 549458.1100000001 1034059.8400000001 156212.93000000002 0 0 0 0 0 0 0 8905.4000000000015 62201.071428571435 0 0 0 0 0 0 0 0 981446.28600000008 0 0 0 0 0 0 157436.55687500001 22404.41333333333 3288.5973076923083 0 91709.19 1201115.0000000002 33951.949999999997 0 12586.039999999997 L25 Covasna 0 0 0 0 0 1661975.22 547524.99 0 0 0 0 0 0 4784.75 0 0 0 0 0 0 0 0 44124.17 0 0 0 0 0 0 18987.797500000001 43768.486666666664 2850.67 0 81093.2 0 0 0 0 L26 Dambovita 0 0 0 0 0 830029.52 0 0 0 0 0 0 0 8064.67 0 0 0 0 0 0 0 0 132372.51 0 0 0 0 0 0 149678.51090909092 22291.245999999999 2563.2460000000001 0 30889.35 0 76342.841428571424 0 0 L27 Dolj 0 0 423267.53287499998 0 0 101801.98880000001 0 0 28169.709299999999 0 0 0 0 79898.885280333328 0 0 0 0 0 0 0 0 794235.06 0 0 0 0 0 0 174559.63999999998 177839.38666666669 2321.4768421052631 11265.93 70956.55 961108.69 17026.96 0 0 L28 Galati 36905.426666666666 37782.862222222226 0 0 0 504662.23 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 210205.07857142857 146.34899999999999 2774.2647058823532 0 80111.873999999996 841901.86 11010.41 0 0 L29 Giurgiu 0 0 0 0 0 0 1004117.45 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 27010.427500000002 41389.299999999996 4857.32 4809.6099999999997 0 0 17587.62 0 0 L30 Gorj 0 0 0 0 0 0 0 0 59323.14 0 0 0 0 0 0 0 0 0 0 0 0 0 529490.04 0 0 0 0 0 0 167531.6225 18844.580000000002 3228.5328571428572 0 101845.9 0 0 0 0 L31 Harghita 27044.703333333335 12614.21 0 0 0 0 0 0 0 0 0 0 0 44219.381666666661 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 31284.153333333335 2052 3152.8630769230772 4216.84 25948.255000000001 0 349014.17 0 0 L32 Hunedoara 0 0 0 0 0 0 141855 0 149255.95000000001 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2820.3779999999997 0 68193.215555555551 0 0 175739.02 7282.03 L33 Ialomita 0 0 0 1051809.4099999999 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 220620.85 0 0 0 0 0 0 136065.20499999999 577441.62 2882.4939999999997 0 30165.703999999998 0 0 0 0 L34 Iasi 52837.023125 41050.103333333333 654287.51 880814.95666666667 0 0 0 74715.87 61304.491111111114 17270.727857142858 0 227334.55428571426 15605.254800000001 64096.320363636369 132439.24000000002 102578.984 0 0 0 367.7056 21679.981538461539 21217.487407407407 507427.95500000002 0 0 0 0 313108.74249999999 243319.29749999999 35007.137499999997 161278.57750000001 2026.9706666666668 0 71407.940833333327 0 0 57314.98 11192.055 L35 Maramures 54606.318333333329 34268.892500000002 0 0 0 0 0 0 34438.661249999997 0 0 199203.495 0 67896.380823529413 0 0 0 0 0 0 0 0 191204.73666666666 0 0 0 0 0 0 15221.48 52.7 2888.4547368421054 23063.0275 19207.316923076924 0 313674.45 0 0 L36 Mehedinti 0 0 0 0 0 0 0 0 0 0 0 0 0 32295.72 0 0 0 0 0 0 0 0 132372.51 0 0 0 0 0 0 611319.93000000005 0 2998.7799999999997 0 0 0 9182.24 0 0 L37 Mures 30231.095000000001 55671.775000000001 303894.44 1324602.8400000001 0 552361.84 0 0 36742.747499999998 31112.065189873418 0 0 11278.853043478261 41844.116399999999 0 0 0 0 0 460.80714285714288 10707.784285714286 11168.591428571428 1054223.3700000001 0 0 0 0 0 0 300970.71499999997 96367.95 1627.4597058823529 0 53329.555 1066018.07 395015.61 0 0 L38 Neamt 55811.519999999997 53001.68 597526.58499999996 0 0 0 0 0 0 0 0 0 0 70275.960000000006 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 23998.004166666666 146921.15 2395.718823529412 28450.52 59719.48 0 234036.07 0 0 L39 Olt 0 0 0 0 148671.47 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 529490.04 0 0 0 0 0 0 70753.929999999993 179796.31666666665 3694.07375 0 122119.2 0 206269.54625000001 0 25172.080000000002 L40 Prahova 0 0 0 0 0 72131.23 0 0 0 0 0 0 0 76317.177058823523 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 133910.90625 215568.19833333333 2071.6630769230769 4869.96 61059.6 0 45045.153999999995 0 0 L41 Satu Mare 69391.802500000005 49258.428333333337 0 0 0 0 0 0 91117.615000000005 0 0 0 0 0 0 0 0 0 0 0 0 0 264745.02 0 0 0 0 0 0 230689.535 49202.278000000006 2681.6490909090908 0 65944.785000000003 1171220.3400000001 44310.455000000002 0 0 L42 Salaj 0 0 0 0 0 0 0 0 51628.85 0 0 0 0 26530.6 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 3393.4175 22593.06 0 0 218071.3 0 0 L43 Sibiu 0 0 0 0 0 0 0 0 80232.83 0 0 0 0 85578.671538461538 0 112496.298 0 0 0 0 0 0 567380.59199999995 0 0 0 0 0 0 14182.764999999999 111876.1875 1746.7133333333334 0 0 2124144.89 7237.6 225082.37 0 L44 Suceava 69317.22 29051.854285714286 764225.75 0 0 622386.76 0 0 0 0 904053.82705882355 0 0 45090.106666666667 0 0 0 0 0 0 0 0 794235.06 0 0 0 0 0 0 165440.63799999998 19509.509999999998 2814.0756000000001 0 87064.11 1254038.5 40343.919999999998 0 0 L45 Teleorman 0 0 0 0 0 2449108.84 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 132372.51 0 0 0 0 0 0 26927.919999999998 19777.88 1916.2233333333334 0 0 0 0 0 0 L46 Timis 60628.987931034477 42757.535945945951 0 1766017.65 0 2307253.33 0 0 102868.49384615384 51760.473617021271 0 0 0 86760.747222222213 41849.19 233883.00333333333 0 0 0 256.43444444444441 19679.550000000003 19935.984444444446 801762.07294117648 0 1187595.6399999999 0 132037.79999999999 0 1006385.01 237129.33913043476 278418.02222222224 2187.4209677419358 10256.495714285715 67021.52916666666 0 257180.57142857142 0 0 L47 Tulcea 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 113451.83111111111 254330.23999999999 2064.73 0 0 2343144.12 17587.62 0 0 L48 Vaslui 0 0 577774.21999999986 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 132372.51 0 0 0 0 0 0 16909.732857142859 17046.2 2590.136 10743.06 68563.94 0 0 118424 0 L49 Valcea 0 0 0 0 0 0 0 0 0 0 0 0 0 78275.839999999997 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 89130.19 121791.56333333334 2159.5725000000002 0 122119.2 0 0 0 0 L50 Vrancea 0 0 544848.5116666666 0 0 0 0 0 0 0 0 0 0 89768.332857142857 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 105633.82333333332 5168.6000000000004 2828.1657142857143 0 117050.875 0 252041.75 0 10403 L51 Bucuresti 66627.375140845063 50630.195183018863 633383.78997329355 0 0 1232729.6199999999 0 0 37081.290357142854 41685.950736636994 523670.09156666655 512870.26159230765 10845.152713978494 43090.709998351653 152258.80615466667 105502.07945178846 450.56384615384616 23807.143999999997 11087.671363636362 898.28966666666679 10621.285172413794 11165.532000000001 824500.93357534253 169030.80951999998 2114472.33 2611360.9933333336 654661.33785555558 0 498519.68773999996 116945.25707692308 95827.74580645161 2254.5414285714287 16222.764999999999 62804.73 1853152.4571428571 108169.22 156950.19999999998 2600.7333333333331 L52 Ilfov 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 42116.368333333332 39108.822 952.83333333333337 0 30769.5 0 0 0 5849.67 L53 AOPSNAJ 36163.326153846152 22156.821666666667 0 1768795.7499999998 0 0 0 0 92892.559600000008 0 0 198997.76000000001 0 35665.316825396825 0 0 0 0 0 0 0 0 538247.82199999993 0 0 0 0 0 0 136839.01957446808 119651.75275862067 2162.007957746479 4588.4285714285706 54385.05266666667 945909.22857142857 150939.26645161293 0 13703.463333333333 L54 Total 63482.382975261324 44453.761405468744 575481.98426839116 1229510.5445454547 157719.73333333331 1236123.7264 658672.5828571429 74715.87 70473.053537140266 44045.014906460943 804823.28736521746 391914.17616464285 11689.095882967033 58450.9900991182 132717.85536936842 120703.33159855405 450.56384615384616 23807.143999999997 11087.671363636362 704.50652637362646 18162.628894673915 18458.21225755319 744804.218042174 210783.47673279996 1496554.5366666664 2611360.9933333336 559638.8764272728 313108.74249999999 471998.99421249999 118578.98335294118 114275.83047101449 2459.5339950678167 12696.91625 60221.713061224495 1493009.9586666666 154245.9203816794 147633.75909090909 10418.529999999999 L55 Total/CNP 63927.873382105259 44803.791022834637 588270.47280768864 1229510.5445454547 157719.73333333331 1236123.7264 658672.5828571429 74715.87 71772.095998654375 51722.586312174317 804823.28736521746 391914.17616464285 11753.67652320442 58909.069958829161 132717.85536936842 120703.33159855405 0 23807.143999999997 11087.671363636362 712.3343766666668 18162.628894673915 18458.21225755319 744804.218042174 210783.47673279996 1496554.5366666664 2611360.9933333336 559638.8764272728 313108.74249999999 471998.99421249999 130334.65842672416 126667.1855823293 2600.6285136896995 13365.175000000001 67577.03679389313 1493009.9586666666 155432.42746153846 147633.75909090909 11162.710714285713