Indicatori PNS 2026 / Boli rare-nr bolnavi-6 luni 2026.xlsx

NUMAR BOLNAVI boli rare L2 Programul naţional de tratament pentru boli rare L3 Situaţia indicatorilor fizici realizaţi în perioada 01.01.2026-30.06.2026 L7 CAS Număr bolnavi cu boli rare cărora li s-au eliberat medicamente/materiale sanitare prin farmaciile cu circuit închis, pentru: Număr bolnavi cu boli rare cărora li s-au eliberat medicamente prin farmaciile cu circuit deschis, pentru: L8 Boli neurologice degenerative/ inflamator-imune forme cronice Boli neurologice degenerative/ inflamator-imune forme acute Boala Fabry Boala Pompe Tirozinemie Mucopolizaharidoză tip II (sindromul Hunter) Mucopolizaharidoză tip I (sindromul Hurler) Afibrinogenemie congenitală Sindrom de imunodeficienţă primară HTPA Amiloidoză cu transtiretină: Scleroză sistemică şi ulcerele digitale evolutive Purpura trombocitopenică imună cronică Hiprerfenilalaninemie la bolnavii diagnosticaţi cu fenilcetonurie sau deficit de tetrahidrobiopterină (BH4) Scleroza tuberoasă Osteogeneză imperfectă Epidermoliză buloasă Atrofie musculară spinală Boala Castelman Mucopolizaharidoza Tip IVA Lipofuscinoza ceroida TIP 2 (TPP1) Sindrom hemolitic uremic atipic (SHUa) Hemoglobinurie paroxistică nocturnă(HPN) Deficit de sfingomielinază acidă (DSMA) Mucoviscidoză copii Mucoviscidoză adulţi Scleroză laterală amiotrofică Sindrom Prader Willi fibroză pulmonară idiopatică distrofie musculară Duchenne angioedem ereditar Neuropatie optică ereditară Leber Limfangioleiomiomatoză Purpura trombocitopenică imună cronică Boala Fabry Atrofie musculară spinală L9 afectare neurologică afectare cardiacă sau formă mixtă medicamente materiale sanitare Total medicamente materiale sanitare Total bolnav adult / copil cu greutate > 40 Kg bolnav copil cu greutate < 40 Kg L10 C0 C1 C2 C3 C4 C5 C6 C7 C8 C9 C10 C11 C12 C13 C14 C15 C16 C17 C18 C19 C20 C21 C22 C23 C24 C25 C26 C27 C28 C29 C30 C31 C32 C33 C34 C35 C36 C37 C38 C39 C40 C41 C42 L11 Alba 8 5 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 4 1 12 1 4 0 0 0 0 2 0 3 L12 Arad 0 0 0 0 0 2 0 0 0 0 0 0 4 11 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 1 7 0 6 0 0 0 0 0 0 0 L13 Arges 0 0 4 0 1 0 0 0 0 0 0 6 0 10 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 5 5 22 1 4 0 2 0 0 15 0 5 L14 Bacau 15 12 2 0 0 0 0 0 0 0 0 0 0 6 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2 4 3 18 1 11 0 3 0 1 6 0 0 L15 Bihor 24 7 1 0 0 0 1 0 6 17 0 0 0 1 6 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 13 3 24 0 4 0 5 0 0 23 0 3 L16 Bistrita-Nasaud 3 2 0 0 0 0 0 0 0 0 0 0 0 12 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 2 0 7 0 4 0 0 0 9 0 0 L17 Botosani 0 0 0 0 0 0 0 0 0 0 0 0 0 3 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 9 2 4 0 5 0 1 0 0 9 0 3 L18 Brasov 3 2 3 0 0 1 0 0 19 0 0 3 0 6 0 4 0 0 0 0 0 0 0 1 0 0 0 0 0 0 37 15 28 0 6 0 4 0 0 20 0 5 L19 Braila 0 1 0 0 0 2 0 0 0 0 0 2 0 7 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 14 3 10 1 0 0 1 1 0 8 0 0 L20 Buzau 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2 2 14 0 2 0 0 0 0 3 0 0 L21 Caras-Severin 0 0 0 1 0 0 0 0 0 0 0 0 0 11 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2 10 0 1 0 1 0 0 0 0 L22 Calarasi 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 4 0 1 0 0 0 2 0 0 1 0 0 L23 Cluj 69 24 3 0 0 0 0 0 91 193 0 26 45 52 12 7 0 0 0 22 22 22 6 10 0 0 3 3 3 3 6 13 31 2 36 0 1 6 1 48 0 6 L24 Constanta 29 15 2 2 1 0 0 0 0 0 0 1 7 8 0 0 0 0 0 0 0 0 6 0 0 0 0 0 0 0 23 11 25 0 15 0 5 0 1 11 0 2 L25 Covasna 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 14 8 9 0 1 0 0 0 0 3 0 4 L26 Dambovita 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 10 6 10 1 1 0 7 1 1 4 0 5 L27 Dolj 11 7 3 1 0 1 0 0 2 0 0 5 14 2 0 0 0 0 0 0 0 0 0 0 0 0 2 0 3 3 8 5 24 1 8 0 1 0 1 18 1 2 L28 Galati 3 4 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 6 9 10 0 2 0 0 0 0 5 0 2 L29 Giurgiu 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 2 2 3 1 1 0 0 0 0 0 0 1 L30 Gorj 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 3 1 9 0 3 0 0 0 1 2 0 5 L31 Harghita 26 8 0 0 0 0 0 0 3 0 0 0 11 10 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2 3 11 0 3 0 1 0 0 3 0 1 L32 Hunedoara 0 0 0 0 0 0 0 0 2 0 0 0 0 12 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 5 1 7 0 6 0 0 0 0 0 0 0 L33 Ialomita 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 3 3 3 0 2 0 0 1 0 4 0 5 L34 Iasi 23 15 4 1 0 0 0 0 22 71 3 25 22 35 1 8 0 0 0 18 29 29 3 0 0 0 11 16 4 8 21 15 11 0 5 0 2 4 2 12 3 0 L35 Maramures 15 4 0 0 0 0 0 0 22 0 0 8 0 90 0 0 0 0 0 0 0 0 0 0 0 0 2 0 0 2 6 0 14 1 14 0 1 1 0 28 0 3 L36 Mehedinti 10 5 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 6 0 2 0 0 0 0 3 0 3 L37 Mures 17 12 1 4 0 0 0 0 12 135 0 3 14 9 0 0 0 0 0 9 9 9 2 0 0 0 2 0 1 2 12 5 22 0 11 0 2 0 0 34 0 3 L38 Neamt 6 7 5 0 0 0 0 0 0 0 0 0 0 9 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 10 4 12 1 13 0 4 0 1 12 0 1 L39 Olt 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2 3 8 0 2 0 5 0 1 0 0 1 L40 Prahova 0 0 0 0 0 0 0 0 0 0 0 0 0 8 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 20 14 23 1 4 0 3 0 2 11 0 0 L41 Satu Mare 13 3 1 0 0 0 0 0 4 0 0 6 0 5 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2 5 11 0 4 0 3 0 0 1 0 0 L42 Salaj 0 0 0 0 0 0 0 0 0 0 0 0 0 4 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 5 2 5 0 3 0 0 1 0 1 L43 Sibiu 24 9 0 0 0 0 0 0 7 0 0 0 0 36 0 6 0 0 0 0 0 0 4 3 0 0 3 0 1 0 6 2 6 0 5 0 1 0 1 13 0 0 L44 Suceava 13 9 2 0 0 2 0 0 0 0 20 0 0 5 0 0 0 0 0 0 0 0 0 0 1 0 3 0 2 0 10 3 26 0 13 0 7 0 0 10 0 3 L45 Teleorman 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 5 5 5 0 0 0 0 0 0 1 0 5 L46 Timis 57 58 2 0 1 2 0 0 25 67 0 7 1 41 3 10 0 0 0 10 10 10 4 0 2 0 3 2 3 2 14 15 31 5 32 0 6 0 4 58 0 9 L47 Tulcea 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 5 5 2 0 0 0 1 0 0 1 0 0 L48 Vaslui 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 5 0 16 0 4 0 0 0 0 2 0 3 L49 Valcea 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 7 5 7 0 0 0 0 0 0 2 0 0 L50 Vrancea 0 0 5 0 0 0 0 0 0 0 0 0 0 9 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 5 0 10 0 3 0 3 0 1 4 3 1 L51 Bucuresti 210 104 15 1 0 1 0 0 41 366 8 32 125 76 21 73 8 2 10 28 30 30 98 14 1 4 34 13 28 12 42 71 68 7 66 0 19 1 8 93 1 16 L52 Ilfov 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 6 0 8 0 4 0 0 0 0 0 0 2 L53 AOPSNAJ 14 5 0 1 0 0 0 0 73 7 0 10 0 0 0 0 0 0 0 0 0 0 5 0 0 0 0 0 0 0 151 93 175 15 120 0 32 4 11 183 10 45 L54 Total =SUM(B11:B53) =SUM(C11:C53) =SUM(D11:D53) =SUM(E11:E53) =SUM(F11:F53) =SUM(G11:G53) =SUM(H11:H53) =SUM(I11:I53) =SUM(J11:J53) =SUM(K11:K53) =SUM(L11:L53) =SUM(M11:M53) =SUM(N11:N53) =SUM(O11:O53) =SUM(P11:P53) =SUM(Q11:Q53) =SUM(R11:R53) =SUM(S11:S53) =SUM(T11:T53) =SUM(U11:U53) =SUM(V11:V53) =SUM(W11:W53) =SUM(X11:X53) =SUM(Y11:Y53) =SUM(Z11:Z53) =SUM(AA11:AA53) =SUM(AB11:AB53) =SUM(AC11:AC53) =SUM(AD11:AD53) =SUM(AE11:AE53) =SUM(AF11:AF53) =SUM(AG11:AG53) =SUM(AH11:AH53) =SUM(AI11:AI53) =SUM(AJ11:AJ53) =SUM(AK11:AK53) =SUM(AL11:AL53) =SUM(AM11:AM53) =SUM(AN11:AN53) =SUM(AO11:AO53) =SUM(AP11:AP53) =SUM(AQ11:AQ53) L55 Total/CNP 587 316 55 12 4 15 2 0 324 853 31 134 243 478 43 108 8 2 10 87 99 99 128 28 4 4 64 34 49 35 374 290 686 39 367 0 119 19 27 608 17 144