Indicatori PNS 2025 / Boli rare-cost mediu-6 luni 2025.xlsx

COST MEDIU boli rare L2 Programul naţional de tratament pentru boli rare L3 Situaţia indicatorilor fizici realizaţi în perioada 01.01.2025-30.06.2025 L5 Lei L7 CAS Cost mediu/bolnav cu: L8 Boli neurologice degenerative/ inflamator-imune forme cronice Boli neurologice degenerative/ inflamator-imune forme acute Boala Fabry( circuit închis + circuit deschis) Boala Pompe Tirozinemie Mucopolizaharidoză tip II (sindromul Hunter) Mucopolizaharidoză tip I (sindromul Hurler) Afibrinogenemie congenitală Sindrom de imunodeficienţă primară HTPA Amiloidoză cu transtiretină: Scleroză sistemică şi ulcerele digitale evolutive Purpura trombocitopenică imună cronică( circuit închis + circuit deschis) Hiprerfenilalaninemie la bolnavii diagnosticaţi cu fenilcetonurie sau deficit de tetrahidrobiopterină (BH4) Scleroza tuberoasă Osteogeneză imperfectă Epidermoliză buloasă Atrofie musculară spinală( circuit închis + circuit deschis) Boala Castelman Mucopolizaharidoza Tip IVA Lipofuscinoza ceroida TIP 2 (TPP1) Sindrom hemolitic uremic atipic (SHUa) Hemoglobinurie paroxistică nocturnă(HPN) Deficit de sfingomielinază acidă (DSMA) Mucoviscidoză copii Mucoviscidoză adulţi Scleroză laterală amiotrofică Sindrom Prader Willi fibroză pulmonară idiopatică distrofie musculară Duchenne angioedem ereditar Neuropatie optică ereditară Leber Limfangioleiomiomatoză L9 afectare neurologică afectare cardiacă sau formă mixtă medicamente materiale sanitare Total medicamente materiale sanitare Total bolnav adult / copil cu greutate > 40 Kg bolnav copil cu greutate < 40 Kg L10 C0 C1 C2 C3 C4 C5 C6 C7 C8 C9 C10 C11 C12 C13 C14 C15 C16 C17 C18 C19 C20 C21 C22 C23 C24 C25 C26 C27 C28 C29 C30 C31 C32 C33 C34 C35 C36 C37 C38 C39 L11 Alba 66793.73 48785.11 0 0 0 0 0 0 0 0 0 0 0 60210.96 0 0 0 0 0 0 0 0 796334.7 0 0 0 0 0 0 0 430539.3775 4163.025 2685.7430769231 5389.08 37147.86 0 355525.71 0 0 L12 Arad 0 0 0 0 0 796075.6 0 0 0 0 0 0 4723.2466666667 46423.055 0 0 0 0 0 0 0 0 0 0 0 0 0 0 780728.09 0 438189 0 2129.4414285714 0 29754.524285714 406019.14 0 0 6708 L13 Arges 0 0 276088.6925 0 73826.14 799958.84 0 0 0 0 0 0 0 36379.214666667 0 0 0 0 0 0 0 0 455048.4 0 0 0 0 0 0 0 454992.4 122184.60166667 2377.8726666667 3219.21 36883.6025 0 217445.7075 0 0 L14 Bacau 49610.275 40505.96 320598 0 0 0 0 0 0 0 0 0 0 33324.43 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 671429.17 191321.784 162336.39333333 2167.0188235294 898.18 35436.345 0 256026.37 0 0 L15 Bihor 87398.300555556 61532.705 0 0 0 0 551864.91 0 65807.3675 45490.867647059 0 0 0 58726.409285714 20190.661428571 0 0 0 0 0 0 0 511929.45 0 0 0 430732.03 0 0 0 290836.51833333 484913.57666667 2595.1395833333 0 40128.67 499628.16 60746 0 0 L16 Bistrita-Nasaud 0 0 0 0 0 0 0 0 0 0 0 0 0 24662.892142857 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 390725.3 0 1781.632 0 48894.014 0 0 0 0 L17 Botosani 0 0 0 0 0 0 0 0 0 0 0 0 0 26512.12 0 0 0 0 0 0 0 0 568810.5 0 0 0 0 0 0 0 167637.27 493792.43 2295.0566666667 0 32905.1775 0 37433.77 0 0 L18 Brasov 0 0 343356.2 0 0 1447324.89 0 0 46545.078666667 0 0 0 0 17977.682857143 0 45560.3675 0 0 0 0 0 0 549850.15 196285.93 0 0 0 0 0 0 182307.80769231 209945.34615385 2446.016 0 38473.746 0 107053.185 0 0 L19 Braila 0 16862.73 0 0 0 489895.21 0 0 0 0 0 0 0 25963.004666667 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 296626.395 466283.56 2528.71 4371.84 0 609242.49 17015.35 124742.52 0 L20 Buzau 0 0 0 0 0 0 0 0 53491.31 0 0 0 0 47667.01 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 372016.92 166460.57 2289.139 0 18015.46 0 0 20790.41 0 L21 Caras-Severin 0 0 0 733088.24 0 0 0 0 0 0 0 0 0 33582.974 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 24717.54 2425.1955555556 0 30374.01 843122.52 6806.14 0 0 L22 Calarasi 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 423637.07 438188.88 1597.06 0 0 0 204382.105 0 0 L23 Cluj 55819.764072727 44948.119993333 383225.4591 0 0 0 0 0 36036.649204462 40321.735874696 0 200060.11523518 4441.0385272727 44886.902668533 28910.473874231 27101.3676 0 0 0 2165.1746291667 20336.851880042 22502.026509208 452436.17416667 132780.269525 0 0 265844.69253333 75802.3278 693612.00123 900525.623263 356904.495 230341.46 2110.4271428571 7971.3475 31868.896944444 0 0 93556.89 0 L24 Constanta 61818.57173913 49364.465 137151.345 558498.33 78105.26 0 0 0 0 0 0 0 3785.7942857143 29308.876875 0 0 0 0 0 0 0 0 443494.28142857 0 0 0 0 0 0 0 220957.5815 24686.376666667 2233.4596551724 0 35924.630833333 218658.58 123151.0375 0 6708 L25 Covasna 0 0 0 0 0 768164.16 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 227524.2 0 0 0 0 0 0 0 244178.98 184418.47333333 2871.19 0 47344.74 0 0 0 0 L26 Dambovita 0 0 0 0 0 360791.62 0 0 0 0 0 0 0 58463.04 0 0 0 0 0 0 0 0 568810.5 0 0 0 0 0 0 0 267270.37777778 140836.26428571 2202.0327272727 8689.2 0 0 27725.021666667 103952.085 0 L27 Dolj 0 0 223753.986325 630636.1116 0 634287.1756 0 0 62396.7775 0 0 0 3606.265 56349.444444444 0 0 0 0 0 0 0 0 391847.23333333 0 0 0 455553.47003333 0 579446.39413333 265056.1938 253556.95 305314.1 2334.1938461538 5389.08 27905.062 171747.18 0 0 3353.995 L28 Galati 91913.18 38882.291666667 0 0 0 202082.15 0 0 0 0 0 0 0 36998.73 0 0 0 0 0 0 0 0 455048.4 0 0 0 0 0 0 0 235286.86 24926.908333333 2129.4264285714 0 46565.415 281040.84 0 0 0 L29 Giurgiu 0 0 0 0 0 0 566173.34 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 37920.7 0 0 0 0 0 0 952200.54 282063.99666667 33407.36 1064.72 6359.04 0 0 0 0 0 L30 Gorj 0 0 0 0 0 0 0 0 25483.92 0 0 0 0 24036.53 0 0 0 0 0 0 0 0 511929.45 0 0 0 0 0 0 0 258345.95 22400.31 2235.911 0 55685.685 0 0 0 1118 L31 Harghita 39674.6575 35884.618 0 0 0 0 0 0 37391.905 0 0 0 3818.7891666667 32101.307272727 0 0 0 0 0 0 0 0 341286.3 0 0 0 0 0 0 0 122130.03 439275.48 2843.1822222222 0 14664.64 0 387375.9 0 0 L32 Hunedoara 0 0 0 0 0 0 0 0 56138.965 0 0 0 0 50363.124 0 0 0 0 0 0 0 0 0 0 0 0 0 0 723583.34 0 382728.6 438189 2241.236 0 43525.326666667 0 0 0 4472 L33 Ialomita 0 0 0 127655.93 0 0 0 0 0 0 0 0 0 31450.846666667 0 0 0 0 0 0 0 0 318533.88 0 0 0 0 0 0 0 201337.985 382648.36 1863.26 0 33797.04 0 0 103952.1 0 L34 Iasi 53244.450869565 49214.565714286 395003.32285714 739342.56 0 0 0 0 49830.9925 11207.168235294 0 207653.2928 4701.1148 27336.833703704 50885.45 61559.55 0 11118 11118 368.46 8974.0136666667 9231.9356666667 522198.87 0 0 0 696031.99666667 298731.0225 385750.33 364632.46 295670.71727273 282069.93133333 2304.085 0 41764.26375 0 0 103952.05 15651.98 L35 Maramures 51685.6325 28302.801666667 0 0 0 0 0 0 17408.41047619 0 0 130991.785 0 31926.631034483 0 0 0 0 0 0 0 0 568810.5 0 0 0 867053.29 0 0 1345882.055 280905.2 135.81 2086.8513333333 0 33356.032857143 0 764676.04 103952.1 0 L36 Mehedinti 51933.185 33322.99 0 0 0 0 0 0 0 0 0 0 0 38968.8475 0 0 0 0 0 0 0 0 606731.2 0 0 0 0 0 0 0 231522.715 0 2357.5942857143 0 33941.46 0 0 0 0 L37 Mures 49212.036428571 38520.767 290054.41 594140.43333333 0 0 0 0 38489.454444444 18722.592818182 0 248986.65 3166.1192307692 19472.130952381 0 0 0 0 0 132.7425 1785.435 1918.1775 412826.5725 0 0 0 638792.64 146948.7 767884.35 0 288606.77777778 6857.92 2311.15 0 42582.508333333 0 317480.66 0 0 L38 Neamt 75656.193333333 54301.371666667 379435.20666667 0 0 0 0 0 0 0 0 0 0 49023.634 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 109556.62444444 152345.535 1744.65 0 29106.114444444 0 419819.065 0 5589.97 L39 Olt 0 0 0 0 80892.3 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 511929.45 0 0 0 0 0 0 0 219943.01 313091.57666667 2528.71 0 60748.02 0 272097.00666667 0 13416 L40 Prahova 0 0 0 0 0 0 0 0 0 0 0 0 0 64103.498461538 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 172612.4 268321.60769231 2468.2140909091 3974 33499.7525 0 15836.51 0 0 L41 Satu Mare 46578.91 32485.17 283909.47 0 0 0 0 0 46487.62 0 0 199163.2725 0 26064.058571429 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 456099.345 240252.74 2576.9692307692 0 35521.284285714 0 5627.305 0 0 L42 Salaj 0 0 0 0 0 0 0 0 0 0 0 0 0 27270.535 0 0 0 0 0 0 0 0 379207 0 0 0 0 0 0 0 0 0 2262.53 8083.62 29629.383333333 0 53933.93 0 0 L43 Sibiu 45661.400625 34432.006 0 0 0 0 0 0 53392.431666667 0 0 0 0 44621.330714286 0 44714.465 0 0 0 0 0 0 503442.49 206264.41333333 0 0 723279.92 0 0 0 376094.58 104786.78333333 2512.74 0 35436.345 772915.75 0 0 0 L44 Suceava 44901.512222222 54724.463076923 375743.05 0 0 391809.3 0 0 0 0 688873.96181818 149109.39 0 38327.66375 0 0 0 0 0 0 0 0 511929.45 0 0 0 172664.5 0 661917.8 0 342336.06888889 270903.51 2483.6495833333 0 41651.725 936945.32 85739.301111111 0 0 L45 Teleorman 0 0 0 0 0 1201925.89 0 0 0 0 0 0 0 22290.95 0 0 0 0 0 0 0 0 404487.46666667 0 0 0 0 0 0 0 15750.18 20446.3825 2794.025 0 0 0 0 20790.41 0 L46 Timis 55943.64220339 52112.798529412 146079.7 0 89288.71 533578.605 0 0 66247.3625 29422.695081967 0 736637.37666667 0 35901.016056338 14995.405 37914.44125 0 0 0 733.63363636364 19902.144 18826.491818182 443196.51166667 0 551917.81 0 424178.735 73279.546 655062.85 955937.82 176744.92285714 252429.85909091 1975.9775 10890.4325 37542.1775 0 178440.175 0 6333.3466666667 L47 Tulcea 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 140355.85375 154483 532.35 0 0 249814.08 10209.21 0 0 L48 Vaslui 0 0 295921.8 0 0 0 0 0 0 0 0 0 0 55394.61 0 0 0 0 0 0 0 0 492969.1 0 0 0 0 0 0 0 210124.8 0 2049.58375 0 40498.68 0 0 124742.52 0 L49 Valcea 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 356692.11 164488.16 1840.3675 0 0 0 0 0 0 L50 Vrancea 0 0 257491.03428571 0 0 0 0 0 0 0 0 0 0 27338.686666667 0 0 0 0 0 0 0 0 568810.5 0 0 0 0 0 484910.39 0 236009.5 0 2439.9816666667 0 50623.35 0 139923.93 0 5590 L51 Bucuresti 50193.855246927 47352.185110112 306587.67938124 253641.76 0 633647.93 0 0 39680.745861765 26527.049420521 369959.3852 253120.61845 3989.1165405405 33655.440827409 23153.442075 33493.231180896 295.445 35500 12030.296666667 424.75084210526 7375.4217391304 7726.3028695652 798088.2056831 110414.96432727 1013908.59 1274476.3275 582663.09738125 158022.0344375 657118.95630474 543493.514833 238177.47833333 203938.58166667 1728.5211111111 4754.69 38897.076515152 562224.2 193045.75933333 124742.46 3353.9775 L52 Ilfov 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 75841.4 0 0 0 0 0 0 0 71174.125 0 1596.94 0 37906.7725 0 0 0 0 L53 AOPSNAJ 36366.426316667 48300.625 342189.695 930496.79 0 0 0 0 52169.681244776 7109.20475 0 201811.538 0 42478.071438356 0 0 0 0 0 0 0 0 447297.22317073 0 0 0 0 0 0 0 169263.83625 101763.24277778 1937.1384810127 4718.64 40111.269538462 441533.24636364 149917.66888889 90091.818333333 5030.98625 L54 Total 53329.31472479 46306.254304626 309262.8881 574025.3956 80528.1025 686636.82209412 559019.125 0 43813.798489389 27899.236049061 639810.1808 234484.77793818 4082.2683811966 37430.687045907 24833.387783718 36390.265821856 295.445 27372.666666667 11899.968571429 966.74755822785 12451.678407923 13146.476002402 574708.32777857 134361.09180521 705914.73666667 1274476.3275 565187.79526731 209650.74128438 625037.45606437 636690.40650564 219818.80029412 171235.32738095 2157.9877178423 5985.9063636364 37340.310960452 473036.95416667 168364.48681034 93972.6856 5546.7596153846 L55 Total/CNP 53781.258069915 46471.633784286 313948.68943485 574025.3956 80528.1025 686636.82209412 559019.125 0 44254.876997671 27971.70159724 639810.1808 239875.23260343 4117.46035 45298.283686129 24833.387783718 36390.265821856 295.445 27372.666666667 11899.968571429 966.74755822785 12451.678407923 13146.476002402 585867.71278398 134361.09180521 705914.73666667 1274476.3275 587795.307078 209650.74128438 625037.45606437 636690.40650564 288247.24225895 203818.56781377 2457.0474330709 6372.0938709677 41307.719 516040.31363636 174377.50419643 97888.214166667 7210.7875 L63