Indicatori PNS 2024 (1) / Boli rare-cost mediu-6 LUNI 2024.xlsx

COST MEDIU boli rare L2 Programul naţional de tratament pentru boli rare L3 Situaţia indicatorilor fizici realizaţi în perioada 01.01.2024-30.06.2024 L5 Lei L7 CAS Cost mediu/bolnav cu: L8 Boli neurologice degenerative/ inflamator-imune forme cronice Boli neurologice degenerative/ inflamator-imune forme acute Boala Fabry( circuit închis + circuit deschis) Boala Pompe Tirozinemie Mucopolizaharidoză tip II (sindromul Hunter) Mucopolizaharidoză tip I (sindromul Hurler) Afibrinogenemie congenitală Sindrom de imunodeficienţă primară HTPA Amiloidoză cu transtiretină: Scleroză sistemică şi ulcerele digitale evolutive Purpura trombocitopenică imună cronică( circuit închis + circuit deschis) Hiprerfenilalaninemie la bolnavii diagnosticaţi cu fenilcetonurie sau deficit de tetrahidrobiopterină (BH4) Scleroza tuberoasă Osteogeneză imperfectă Epidermoliză buloasă Atrofie musculară spinală( circuit închis + circuit deschis) Boala Castelman Mucopolizaharidoza Tip IVA Lipofuscinoza ceroida TIP 2 (TPP1) Sindrom hemolitic uremic atipic (SHUa) Hemoglobinurie paroxistică nocturnă(HPN) Mucoviscidoză copii Mucoviscidoză adulţi Scleroză laterală amiotrofică Sindrom Prader Willi fibroză pulmonară idiopatică distrofie musculară Duchenne angioedem ereditar Neuropatie optică ereditară Leber Limfangioleiomiomatoză L9 afectare neurologică afectare cardiacă sau formă mixtă medicamente materiale sanitare Total medicamente materiale sanitare Total bolnav adult / copil cu greutate > 40 Kg bolnav copil cu greutate < 40 Kg L10 C0 C1 C2 C3 C4 C5 C6 C7 C8 C9 C10 C11 C12 C13 C14 C15 C16 C17 C18 C19 C20 C21 C22 C23 C24 C25 C26 C27 C28 C29 C30 C31 C32 C33 C34 C35 C36 C37 C38 L11 Alba 0 0 0 0 0 0 0 0 0 0 0 0 0 6796.2 0 0 0 0 0 0 0 0 610451.04 0 0 0 0 0 0 318689.11333333 0 2199.557 4021.2 11473.185 0 343819.34 0 0 L12 Arad 0 0 0 0 0 714298.76 0 0 0 0 0 0 3789.116 50219.112 0 0 0 0 0 0 0 0 0 0 0 0 0 0 558141.24 501607.77 0 2113.93125 0 39487.281666667 552067.83 13716.36 0 10008.72 L13 Arges 0 0 293438.565 0 73131.59 860216.99 0 0 0 0 0 0 0 28285.112857143 0 0 0 0 0 0 0 0 651634.01 0 0 0 0 0 0 312030.2525 77171.4725 2153.6513333333 0 26210.431666667 0 339054.41666667 0 0 L14 Bacau 37449.06875 41972.2 288041.29 0 0 0 0 0 0 0 0 0 0 45220.12 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 229934.92 264009.92 2941.7264285714 0 23958.69 0 442709.435 0 0 L15 Bihor 80176.011111111 71227.05 0 0 0 0 324418.615 0 57539.1275 11766.122857143 0 0 0 50813.425 0 0 0 0 0 0 0 0 247097.82 0 0 0 0 0 0 285557.72222222 465882.91 2763.062173913 0 34881.10625 736090.44 38836.356666667 0 0 L16 Bistrita-Nasaud 0 0 0 0 0 0 0 0 0 0 0 0 0 32371.540714286 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 139857.14 0 741.415 0 44347.2675 0 2797.09 0 0 L17 Botosani 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 489333.3 0 0 0 0 0 0 66289.404 584533.17 1721.155 0 43983.62 0 0 0 0 L18 Brasov 0 0 318006.435 0 0 1252782.84 0 0 50211.551111111 0 0 242596.4 0 12668.079047619 0 51822.186666667 0 0 0 0 0 0 400513.624 0 0 0 0 0 640568.15 104218.1372973 132264.51625 2383.1407142857 0 32294.902 0 166391.745 99499.51 0 L19 Braila 0 40144.1 0 0 0 577360.59 0 0 0 0 0 0 0 12564.359090909 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 286700.91444444 258239.44333333 2736.2 2160.39 0 1196786.1 0 61221.84 0 L20 Buzau 0 0 0 0 0 0 0 0 46837.62 0 0 0 0 76059.52 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 169333.29 515560.16 2515.535 0 0 0 0 121240.53 0 L21 Caras-Severin 0 0 0 780919.67 0 0 0 0 0 0 0 0 0 50154.688 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 60.17 2345.3228571429 0 0 1382911.2 2797.09 0 0 L22 Calarasi 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 383641.1475 485508.75 0 0 0 0 74794.92 0 0 L23 Cluj 62438.25673913 55757.575652174 374917.64986667 0 0 0 0 0 35752.699271356 36958.623452485 0 262428.14692933 4836.2780774194 42813.017842368 69846.563830769 36521.5184 0 0 0 376.68456956522 13816.175543478 14192.860113043 446036.65263333 126333.52825371 0 0 754018.65475 77265.66715 497724.298188 190060.563 211343.8925 2160.7188 21446.4 37684.003529412 0 0 70690.258333333 0 L24 Constanta 63170.3105 42453.028571429 240436.13 538509.985 60897.73 0 0 0 0 0 0 0 3528.13375 33729.407142857 0 0 0 0 0 0 0 0 348957.69 0 0 0 0 0 0 285562.71117647 77468.398181818 2546.9504 0 44031.592857143 567590.95 34382.534 0 6672.48 L25 Covasna 0 0 0 0 0 861240.83 219601.66 0 0 0 0 0 0 14579.01 0 0 0 0 0 0 0 0 121928.13 0 0 0 0 0 0 267180.585 203975.854 2760.2718181818 0 60854.07 0 0 0 0 L26 Dambovita 0 0 0 0 0 380737.89 0 0 0 0 0 0 0 10300.58 0 0 0 0 0 0 0 0 612882.21 0 0 0 0 0 0 168700.04076923 92225.9325 2685.7657142857 0 5634.06 0 28477.925714286 61221.84 0 L27 Dolj 0 0 192144.66333333 0 0 552509.2 0 0 29484.565 0 0 0 0 51390.882352941 0 0 0 0 0 0 0 0 557701.45333333 0 0 0 472137.29 0 639914.485 185987.21076923 340812.27 2153.66 4021.2 10041.96 352862.315 0 0 11676.84 L28 Galati 0 38137.015555556 0 0 0 268159.62 0 0 0 0 0 0 0 19376.115 0 0 0 0 0 0 0 0 247097.82 0 0 0 0 0 0 164236.9575 125677.795 2259.5706666667 0 46008.94375 552067.83 9601.45 0 0 L29 Giurgiu 0 0 0 0 0 0 481865.52 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 321182.3125 3088.15 882.64666666667 1976.3 0 0 5486.54 0 0 L30 Gorj 0 0 0 0 0 0 0 0 50173.38 0 0 0 0 14718.26 0 0 0 0 0 0 0 0 571699.24 0 0 0 0 0 0 245900.04333333 25696.22 2753.854 0 60854.07 0 0 0 0 L31 Harghita 42167.222 39302.418333333 0 0 0 0 0 0 15850.69 0 0 0 4263.2411111111 38628.0075 0 0 0 0 0 0 0 0 204294.07 0 0 0 0 0 0 5125.97 406999.08 2265.9827272727 0 43286.035 0 382189.24 0 0 L32 Hunedoara 0 0 0 0 0 0 0 0 84447.53 0 0 0 0 49953.558333333 0 0 0 0 0 0 0 0 0 0 0 0 0 0 571192.79 326196.28142857 0 2085.5671428571 0 30853.444 0 0 0 0 L33 Ialomita 0 0 0 519370.24 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 386781.07 0 0 0 0 0 0 12762.275 84428.975 2559.6733333333 0 48313.32 0 0 61221.84 0 L34 Iasi 42543.194285714 62044.614545455 336128.44333333 657507.88 0 0 0 0 48899.924666667 10375.070714286 0 233849.38111111 5525.7991304348 30860.682162162 37643.49 54164.28 0 0 0 168.7695 4931.92 5052.4696428571 0 0 0 0 697244.8425 230596.70428571 468045.81142857 167674.79590909 278514.45466667 1673.0730434783 0 40097.104166667 0 0 101073.862 5838.42 L35 Maramures 55820.016666667 40180.885 0 0 0 0 0 0 18978.278125 0 0 387412.595 0 40656.03253012 0 0 0 0 0 0 0 0 528895.49 0 0 0 270184.84 0 0 125765.59 270 2338.999375 3127.6 44120.83 0 382115.305 81228.096 0 L36 Mehedinti 0 0 0 0 0 0 0 0 0 0 0 0 0 37317.733333333 0 0 0 0 0 0 0 0 612882.21 0 0 0 0 0 0 502355.8 0 2581.74 0 22316.36 0 0 0 0 L37 Mures 44100.924615385 45272.77625 245848.37 597499.055 0 0 0 0 26192.015555556 15637.08673913 0 290911.3 3363.1721428571 23027.076111111 0 0 0 0 0 244.16285714286 1633.9585714286 1878.1214285714 361889.74666667 0 0 0 0 0 520940.44 260275.62625 92687.19 1951.0186956522 0 32035.392857143 182194.86 563426.905 0 0 L38 Neamt 71116.33 62708.2525 356660.49666667 0 0 0 0 0 0 0 0 0 0 38549.513333333 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 99955.183636364 196402.70666667 2389.03 10723.2 25877.333333333 0 179934.72 0 3336.22 L39 Olt 0 0 0 0 73163.35 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 428774.43 0 0 0 0 0 0 499613.91 265522.155 1986.8022222222 0 50611.35 0 108993.35777778 0 13344.96 L40 Prahova 0 0 0 0 0 0 0 0 0 0 0 0 0 60116.285 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 166813.818 300262.61166667 2683.2453333333 1954.325 32535.804 0 27647.95 20006.25 0 L41 Satu Mare 32676.166666667 39446.58 0 0 0 0 0 0 42869.365 0 0 0 0 28631.623333333 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 482332.46666667 129334.69 2118.3425 0 54171.795 0 6418.91 0 0 L42 Salaj 0 0 0 0 0 0 0 0 0 0 0 0 0 26864.516666667 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2647.936 16084.8 0 0 37724.596666667 0 0 L43 Sibiu 0 0 0 0 0 0 0 0 39862.366666667 0 0 0 0 46759.233666667 0 27298.828333333 0 0 0 0 0 0 398948.564 186641.43333333 0 0 775078.97 0 0 287004.69857143 21628.56 1502.4566666667 0 0 1632182.55 5594.18 0 0 L44 Suceava 48794.613333333 33873.186666667 396012.27 0 0 467215.425 0 0 0 0 698322.07526316 169645.805 0 26299.9425 0 0 0 0 0 0 0 0 733999.95 0 0 0 136515.09 0 0 298669.661 16638.9 2647.9264705882 0 46215.157777778 1380382.62 101274.09363636 0 0 L45 Teleorman 0 0 0 0 0 1131691.03 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 486902.13 0 0 0 0 0 0 14217.638 19913.843333333 2542.02 0 0 0 0 40413.51 0 L46 Timis 64248.325333333 50700.108518519 253884.25333333 754331.58 45689.74 1209405.3 0 0 59833.726086957 21767.402857143 0 332466.56 0 32997.654590164 34627.985 42692.497142857 0 0 0 83.363333333333 10229.571111111 10312.934444444 445634.98428571 0 603507.485 0 118093.82 105601.65333333 454797.27333333 155974.505 170378.03384615 2294.8766666667 7659.4285714286 35720.843 0 317738.234 0 1112.08 L47 Tulcea 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 175586.9075 422241.7 1765.2733333333 0 0 1380382.62 0 0 0 L48 Vaslui 0 0 312065.23 0 0 0 0 0 0 0 0 0 0 6796.2 0 0 0 0 0 0 0 0 733999.95 0 0 0 0 0 0 124579.21625 16908.9 2510.7892307692 6481.17 60854.07 0 0 121240.59 0 L49 Valcea 0 0 0 0 0 0 0 0 0 0 0 0 0 38400.82 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 321156.6975 179795.16666667 1694.678 0 40368.63 0 0 0 0 L50 Vrancea 0 0 242399.098 0 0 0 0 0 0 0 0 0 0 44195.107 0 0 0 0 0 0 0 0 123548.91 0 0 0 0 0 0 277878.89 0 1959.472 0 55732.71 0 261216.26666667 0 5560.4 L51 Bucuresti 53608.369970803 55062.541966656 211339.72520714 216125.34 0 492038.66 0 0 28422.960694444 22774.096804439 394448.353322 302023.97073235 3748.2376825243 29884.246691302 53848.119975385 28311.317023396 0 36316.53 36316.53 382.36678571429 5457.5989285714 5839.9657142857 435032.58628736 109423.65847273 1041967.31 1283609.8133333 517377.94777826 100584.86 551264.46908889 187506.33854545 147092.88610169 1983.3869736842 5178.4888888889 35107.645517241 763691.73 150590.77235294 80426.01 5004.335 L52 Ilfov 0 0 0 0 0 0 0 0 0 0 0 0 0 19095.165 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 48598.584444444 40319.715 0 0 51192.355 0 40501.255 0 0 L53 AOPSNAJ 34951.55 0 272373.77125 837847.26 0 0 0 0 43970.685 4787.8 0 423378.63 0 40196.539920635 0 0 0 0 0 0 0 0 464418.14323529 0 0 0 0 0 0 139983.58483333 133517.50352113 1809.831015625 5092.0511111111 30465.651636364 431320.60428571 151967.6652 54285.723333333 6751.8985714286 L54 Total 55891.856469136 51641.38237933 255848.87918507 603812.005 63220.6025 728638.93375 337576.1025 0 38979.733997898 23877.682603076 645474.4714473 271942.32813575 4122.8534284974 36216.177653112 59135.529292414 32873.106205432 0 36316.53 36316.53 289.7105183908 7496.6570263158 7761.9708694737 448355.4857797 126091.39242743 749660.76 1283609.8133333 528491.74965882 185755.23210952 531377.58694378 180044.2975498 162014.03690299 2162.7274656489 5999.4072972973 36078.2883 748940.63875 147260.03579365 76959.233307692 6703.3611111111 L55 Total/CNP 56064.896272446 52427.799369878 311670.45282545 603812.005 63220.6025 777214.86266667 337576.1025 0 39121.99580081 24015.10811446 645474.4714473 276886.73410185 4144.3266234375 42669.4443317 59135.529292414 32873.106205432 0 36316.53 36316.53 289.7105183908 7496.6570263158 7761.9708694737 457647.82745389 126091.39242743 749660.76 1283609.8133333 544506.65116364 185755.23210952 531377.58694378 237847.99307895 208748.85524038 2417.3830887372 7160.5829032258 40386.143619403 748940.63875 153345.16123967 86997.394173913 7097.6764705882