Indicatori PNS 2024 (1) / Boli rare-cost mediu-TRIMESTRUL I 2024

COST MEDIU boli rare L2 Programul naţional de tratament pentru boli rare L3 Situaţia indicatorilor fizici realizaţi în perioada 01.01.2024-31.03.2024 L5 Lei L7 CAS Cost mediu/bolnav cu: L8 Boli neurologice degenerative/ inflamator-imune forme cronice Boli neurologice degenerative/ inflamator-imune forme acute Boala Fabry( circuit închis + circuit deschis) Boala Pompe Tirozinemie Mucopolizaharidoză tip II (sindromul Hunter) Mucopolizaharidoză tip I (sindromul Hurler) Afibrinogenemie congenitală Sindrom de imunodeficienţă primară HTPA Amiloidoză cu transtiretină: Scleroză sistemică şi ulcerele digitale evolutive Purpura trombocitopenică imună cronică( circuit închis + circuit deschis) Hiprerfenilalaninemie la bolnavii diagnosticaţi cu fenilcetonurie sau deficit de tetrahidrobiopterină (BH4) Scleroza tuberoasă Osteogeneză imperfectă Epidermoliză buloasă Atrofie musculară spinală( circuit închis + circuit deschis) Boala Castelman Mucopolizaharidoza Tip IVA Lipofuscinoza ceroida TIP 2 (TPP1) Sindrom hemolitic uremic atipic (SHUa) Hemoglobinurie paroxistică nocturnă(HPN) Mucoviscidoză copii Mucoviscidoză adulţi Scleroză laterală amiotrofică Sindrom Prader Willi fibroză pulmonară idiopatică distrofie musculară Duchenne angioedem ereditar Neuropatie optică ereditară Leber Limfangioleiomiomatoză L9 afectare neurologică afectare cardiacă sau formă mixtă medicamente materiale sanitare Total medicamente materiale sanitare Total bolnav adult / copil cu greutate > 40 Kg bolnav copil cu greutate < 40 Kg L10 C0 C1 C2 C3 C4 C5 C6 C7 C8 C9 C10 C11 C12 C13 C14 C15 C16 C17 C18 C19 C20 C21 C22 C23 C24 C25 C26 C27 C28 C29 C30 C31 C32 C33 C34 C35 C36 C37 C38 L11 Alba 0 0 0 0 0 0 0 0 0 0 0 0 0 6796.2 0 0 0 0 0 0 0 0 363353.22 0 0 0 0 0 0 161765.278 0 1310.73125 0 8912.505 0 313674.63 0 0 L12 Arad 0 0 0 0 0 304370.025 0 0 0 0 0 0 2706.51 36321.3825 0 0 0 0 0 0 0 0 0 0 0 0 0 0 278580.02 248391.72 0 1210.4828571429 0 17373.23 273292.29 13716.36 0 5004.36 L13 Arges 0 0 147303.9675 0 36383.34 428954.38 0 0 0 0 0 0 0 17081.55 0 0 0 0 0 0 0 0 363353.22 0 0 0 0 0 0 151487.81 47783.562 1235.7016666667 0 20101.6525 0 167841.79333333 0 0 L14 Bacau 47886.65 36342.445 143662.87 0 0 0 0 0 0 0 0 0 0 10300.59 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 77078.596 87689.31 1380.454 0 18075.546 0 247647.78 0 0 L15 Bihor 54011.97 69519.72 0 0 0 0 182082.595 0 32221.91 4080.8655555556 0 0 0 19416.27375 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 114071.55222222 209684.625 1562.2815 0 25152.185 364389.72 24689.44 0 0 L16 Bistrita-Nasaud 0 0 0 0 0 0 0 0 0 0 0 0 0 17012.464166667 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 988.55 0 20587.0675 0 0 0 0 L17 Botosani 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 242235.48 0 0 0 0 0 0 27356.682857143 248993.31 1323.965 0 20083.94 0 0 0 0 L18 Brasov 0 0 143624.55 0 0 594830.34 0 0 25689.13 0 0 97038.56 0 9916.4 0 29367.175 0 0 0 0 0 0 191769.755 0 0 0 0 0 344129.17 46281.028333333 73369.778571429 1529.9177777778 0 24100.726 0 99040.2825 58684.97 0 L19 Braila 0 33847.23 0 0 0 288407.74 0 0 0 0 0 0 0 16126.92 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 157232.64 121737.71 1482.846 0 0 592452.12 0 0 0 L20 Buzau 0 0 0 0 0 0 0 0 23418.81 0 0 0 0 36446.34 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 90436.06 255367.92 1437.45 0 0 0 0 60018.72 0 L21 Caras-Severin 0 0 0 418740.5 0 0 0 0 0 0 0 0 0 24311.172 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1286.1442857143 0 0 546584.58 0 0 0 L22 Calarasi 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 244441.17 240342.21 0 0 0 0 37034.175 0 0 L23 Cluj 52647.473913043 47599.915294118 180231.1076 0 0 0 0 0 19966.107711617 21233.068198426 0 121320.10742418 2521.5023862069 25797.409942574 35991.704027667 23414.73036 0 0 0 320.66759545455 9266.4784090909 9587.1460045455 302331.24125 78829.163333333 0 0 478746.05625 #DIV/0! 208655.938982 98980.744444444 127424.95 1477.2715789474 14297.6 23140.5336 0 0 44013.75 0 L24 Constanta 48984.84125 41157.945 143688.51 267894.245 36120.71 0 0 0 0 0 0 0 1832.535 15332.777142857 0 0 0 0 0 0 0 0 348957.69 0 0 0 0 0 0 150008.525 41908.996666667 1458.5645833333 0 17825.001666667 273292.29 15362.314 0 3336.24 L25 Covasna 0 0 0 0 0 429352.26 134507.14 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 80745.16 0 0 0 0 0 0 122544.4525 100631.47 1428.28 0 30125.91 0 0 0 0 L26 Dambovita 0 0 0 0 0 223241.81 0 0 0 0 0 0 0 10300.58 0 0 0 0 0 0 0 0 242235.48 0 0 0 0 0 0 93296.056153846 40171.155714286 1588.766 0 0 0 14892.05 0 0 L27 Dolj 0 0 103662.45666667 0 0 264359.09 0 0 10882.97 0 0 0 0 27481.852142857 0 0 0 0 0 0 0 0 255693.00666667 0 0 0 0 0 344129.175 92751.4275 139397.70333333 1348.0445454545 0 10041.96 167011.955 0 0 6672.48 L28 Galati 0 34358.174 0 0 0 156426.44 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 98341.097142857 82956.513333333 1361.7957142857 0 26755.121428571 273292.29 9601.45 0 0 L29 Giurgiu 0 0 0 0 0 0 283861.38 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 171269.56 540 0 1976.3 0 0 5486.54 0 0 L30 Gorj 0 0 0 0 0 0 0 0 26329.21 0 0 0 0 0 0 0 0 0 0 0 0 0 242235.48 0 0 0 0 0 0 93863.643333333 9669.45 1482.844 0 30125.91 0 0 0 0 L31 Harghita 34517.925 36161.71 0 0 0 0 0 0 10351.95 0 0 0 2040.3688888889 17887.905 0 0 0 0 0 0 0 0 80745.16 0 0 0 0 0 0 2162.0466666667 161190.78 1155.4590909091 0 25104.925 0 255877.59 0 0 L32 Hunedoara 0 0 0 0 0 0 0 0 48255.73 0 0 0 0 26742.596 0 0 0 0 0 0 0 0 0 0 0 0 0 0 278580.77 126832.08428571 0 1083.6192307692 0 23766.686666667 0 0 0 0 L33 Ialomita 0 0 0 278879.55 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 222049.19 0 0 0 0 0 0 6592.355 405 1482.844 0 25608.06 0 0 0 0 L34 Iasi 28385.250833333 62011.988823529 167611.54333333 358637.57 0 0 0 0 24371.588 3832.6618 0 141563.55571429 2582.5352173913 14706.845789474 25095.28 26443.726666667 0 0 0 108.065625 2697.8420833333 2769.8858333333 0 #DIV/0! 0 0 288413.9925 115715.7275 242962.11 83544.449047619 210208.555 1193.0635294118 0 27369.68 0 0 48014.982 2502.18 L35 Maramures 32441.267777778 18496.65 0 0 0 0 0 0 17772.670833333 0 0 193374.72 0 21134.201733333 0 0 0 0 0 0 0 0 322980.64 0 0 0 0 0 0 71619.534 0 1359.2666666667 3127.6 24753.877142857 0 189850.74 20006.25 0 L36 Mehedinti 0 0 0 0 0 0 0 0 0 0 0 0 0 19620.8 0 0 0 0 0 0 0 0 242235.48 0 0 0 0 0 0 247746.72 0 1500.5016666667 0 11048.24 0 0 0 0 L37 Mures 38491.108571429 39528.17 134679.35 271126.44 0 0 0 0 15062.538571429 9869.4166216216 0 145528.41 2159.835 12725.921428571 0 0 0 0 0 143.16428571429 1319.3271428571 1462.4914285714 201862.9 0 0 0 0 0 257095.24 127621.90125 86586.64 1186.9414285714 0 21188.754 182194.86 247647.78 0 0 L38 Neamt 28250.206666667 62708.2525 175677.64 0 0 0 0 0 0 0 0 0 0 20262.4 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 50108.347272727 125208.36 1782.945 0 11048.24 0 92399.938 0 1112.08 L39 Olt 0 0 0 0 36259.89 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 181676.61 0 0 0 0 0 0 247333.02 130615.4375 1235.71 0 30125.91 0 56459.962857143 0 6672.48 L40 Prahova 0 0 0 0 0 0 0 0 0 0 0 0 0 35212.90375 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 71587.347272727 151458.23166667 1425.8130769231 1932.35 20083.94 0 16459.63 20006.25 0 L41 Satu Mare 25498.67 39974.963333333 0 0 0 0 0 0 23248.98 0 0 0 0 16321.77 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 254237.32333333 61143.544 1348.0381818182 0 28129.316666667 0 8229.82 0 0 L42 Salaj 0 0 0 0 0 0 0 0 0 0 0 0 0 15226.43 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1376.926 8042.4 0 0 22860.593333333 0 0 L43 Sibiu 0 0 0 0 0 0 0 0 27569.042 0 0 0 0 29372.544444444 0 21753.755 0 0 0 0 0 0 258759.55333333 88759.896666667 0 0 368916.84 0 0 181851.046 11833.06 1249.826 0 0 865496.43 0 0 0 L44 Suceava 31230.861666667 28601.7375 215615.76 0 0 243976.835 0 0 0 0 321308.55368421 96881.6 0 18217.663333333 0 0 0 0 0 0 0 0 363353.22 0 0 0 0 0 0 135169.939 5546.3 1423.261875 0 22594.42 683337 65116.728 0 0 L45 Teleorman 0 0 0 0 0 577691.925 0 0 0 0 0 #DIV/0! 0 0 0 0 0 0 0 0 0 0 363353.22 0 0 0 0 0 0 8094.83 10293.833333333 1191.575 0 0 0 0 20006.24 0 L46 Timis 56951.047222222 44746.847692308 118200.09666667 409604.91 18659.92 604370.13 0 0 32020.1775 11390.646458333 0 116655.51 0 20162.129795918 18819.5 20512.606666667 0 0 0 0 6543.2222222222 6543.2222222222 286715.335 0 337591.39 0 118093.82 83263.28 319548.515 80841.217692308 76208.531111111 1335.48 5138.2 18646.793888889 0 198080.5475 0 0 L47 Tulcea 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 76803.72625 85802 882.63666666667 0 0 683337 0 0 0 L48 Vaslui 0 0 143589.49 0 0 0 0 0 0 0 0 0 0 6796.2 0 0 0 0 0 0 0 0 363353.22 0 0 0 0 0 0 70998.123333333 8454.45 1436.3063636364 6481.17 0 0 0 60018.75 0 L49 Valcea 0 0 0 0 0 0 0 0 0 0 0 0 0 22211.655 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 147960.2075 133629.045 1588.76 0 30125.91 0 0 0 0 L50 Vrancea 0 0 146711.8825 0 0 0 0 0 0 0 0 0 0 23310.131 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 155222.732 0 992.975 0 30125.91 0 129310.43333333 0 2224.16 L51 Bucuresti 41310.735425532 56063.043243243 131841.24038462 107779.14 0 244811.82 0 0 15724.747666667 10261.222743056 192021.7 169971.183125 2236.6082758621 19258.828 32428.066923077 15080.956458333 0 32367 32367 218.28444444444 3457.5765 3654.0325 340312.6025 58436.576363636 519286.47 622105.66666667 294109.05473684 67057 273613.45 108120.30170213 90838.698627451 1287.2091803279 4950.8957142857 23641.022380952 535223.97 110006.60769231 60018.735 2224.14 L52 Ilfov 0 0 0 0 0 0 0 0 0 0 0 0 0 13663.24 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 27303.785 40319.715 0 0 26185.69 0 19523.065 0 0 L53 AOPSNAJ 43444.143333333 0 95412.44625 418923.63 0 0 0 0 31116.426792453 1543.11 0 211654.98 0 27505.955978261 0 0 0 0 0 0 0 0 260760.74730769 0 0 0 0 0 0 93393.101521739 89903.903469388 1221.5352325581 4573.915 18359.386944444 273398.565 77689.228636364 20006.24 4170.29 L54 Total 43386.038604651 50185.448803419 135497.9505125 307060.667 36254.646666667 360952.4575 195633.4275 0 23505.022447082 12287.982557943 298823.88347826 146680.40799318 2307.4096465116 22150.521856539 32721.414226143 17748.663408824 0 32367 32367 217.69852539683 4949.8360365854 5117.0922207317 288961.83952 69102.8505 398156.41666667 622105.66666667 303193.73268519 106589.723125 273082.50993638 97112.720273349 96184.037370892 1321.7359273423 5201.6760869565 22019.697596567 422542.44304348 86981.750917431 44154.134210526 3792.9821428571 L55 Total/CNP 43386.038604651 50185.448803419 157670.34241455 307060.667 36254.646666667 360952.4575 195633.4275 0 23505.022447082 12287.982557943 298823.88347826 146680.40799318 2307.4096465116 24134.755075863 32721.414226143 17748.663408824 0 32367 32367 217.69852539683 4949.8360365854 5117.0922207317 298514.29702479 69102.8505 398156.41666667 622105.66666667 303193.73268519 106589.723125 273082.50993638 119085.15139665 117742.52850575 1388.0881325301 5201.6760869565 23215.337285068 422542.44304348 90295.341428571 46607.141666667 4084.75