Indicatori PNS 2023- (2) / Boli rare-cost mediu-AN 2023

COST MEDIU boli rare L2 Programul naţional de tratament pentru boli rare L3 Situaţia indicatorilor fizici realizaţi în perioada 01.01.2023-31.12.2023 L5 Lei L7 CAS Cost mediu/bolnav cu: L8 Boli neurologice degenerative/ inflamator-imune forme cronice Boli neurologice degenerative/ inflamator-imune forme acute Boala Fabry( circuit închis + circuit deschis) Boala Pompe Tirozinemie Mucopolizaharidoză tip II (sindromul Hunter) Mucopolizaharidoză tip I (sindromul Hurler) Afibrinogenemie congenitală Sindrom de imunodeficienţă primară HTPA Amiloidoză cu transtiretină: Scleroză sistemică şi ulcerele digitale evolutive Purpura trombocitopenică imună cronică( circuit închis + circuit deschis) Hiprerfenilalaninemie la bolnavii diagnosticaţi cu fenilcetonurie sau deficit de tetrahidrobiopterină (BH4) Scleroza tuberoasă Osteogeneză imperfectă Epidermoliză buloasă Atrofie musculară spinală( circuit închis + circuit deschis) Boala Castelman Mucopolizaharidoza Tip IVA Lipofuscinoza ceroida TIP 2 (TPP1) Sindrom hemolitic uremic atipic (SHUa) Hemoglobinurie paroxistică nocturnă(HPN) Mucoviscidoză copii Mucoviscidoză adulţi Scleroză laterală amiotrofică Sindrom Prader Willi fibroză pulmonară idiopatică distrofie musculară Duchenne angioedem ereditar Neuropatie optică ereditară Leber Limfangioleiomiomatoză L9 afectare neurologică afectare cardiacă sau formă mixtă medicamente materiale sanitare Total medicamente materiale sanitare Total bolnav adult / copil cu greutate > 40 Kg bolnav copil cu greutate < 40 Kg L10 C0 C1 C2 C3 C4 C5 C6 C7 C8 C9 C10 C11 C12 C13 C14 C15 C16 C17 C18 C19 C20 C21 C22 C23 C24 C25 C26 C27 C28 C29 C30 C31 C32 C33 C34 C35 C36 C37 C38 L11 Alba 0 0 0 0 0 0 0 0 0 0 0 0 0 20601.14 0 0 0 0 0 0 0 0 1153836.69 0 0 0 0 0 0 565894.9575 0 3143.7025 0 35495.225 0 1519559.14 178173.88 0 L12 Arad 0 0 0 0 0 1548187.925 0 0 0 0 0 0 9670.03 84839.373333333 0 0 0 0 0 0 0 0 892843.26 0 0 0 0 0 1007827.83 1106341.23 9786.13 3190.0485714286 0 60282.64 1086503.13 1626012.12 0 19263.75 L13 Arges 0 0 520797.1225 0 139842.21 2135514.27 0 0 0 0 0 0 0 38735.335384615 0 0 0 0 0 0 0 0 587725.66 0 0 0 0 0 0 436094.41555556 56808.57 3285.6921428571 0 18285.3675 0 798803.88666667 0 0 L14 Bacau 31158.02 47304.6375 572122.47 0 0 0 0 0 0 0 0 0 0 90465.54 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 119322.93571429 153454.72714286 4452.7858333333 0 87503.806666667 0 762380.86666667 0 0 L15 Bihor 154852.3368 63321.393333333 0 0 0 0 660749.675 0 113061.7175 9436.0890909091 0 0 0 73759.269285714 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 423846.753 332146.56 3103.8083333333 0 71012.733636364 1208283.8 66451.563333333 0 0 L16 Bistrita-Nasaud 0 0 0 0 0 0 0 0 0 0 0 0 0 46291.5795 0 0 0 0 0 0 0 0 529490.04 0 0 0 0 0 0 8831.6 0 2137.7533333333 0 70493.084 0 732932.58 0 0 L17 Botosani 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 744036.05 0 0 0 0 0 0 169983.79 168879.24 2709.314 0 25104.925 0 90742.27 0 0 L18 Brasov 0 0 185515.04 0 0 1541369.42 0 0 99572.3 0 0 169817.475 0 22454.413333333 0 86154.82 0 0 0 0 0 0 1085774.6 0 0 0 0 0 1303975 198523.20525 111835.69444444 2937.3075 0 70752.571666667 0 238096.085 69750.24 0 L19 Braila 0 25673.842857143 0 0 0 22275.48 0 0 0 0 0 0 0 31574.056923077 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 507697.23636364 489580.56 2625.85 10230.71 10136.65 2355365.1 0 0 0 L20 Buzau 0 0 0 0 0 0 0 0 91404.47 0 0 0 0 254493.76 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 41665.444 0 2626.6041176471 0 0 995725.74 0 0 0 L21 Caras-Severin 0 0 0 1565399.41 0 0 0 0 0 0 0 0 0 111815.4425 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 4346.1344444444 0 8164.49 3259509.39 15467.41 0 0 L22 Calarasi 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 286364.08 80114.07 2475.9 0 89429.15 0 173658.37 0 0 L23 Cluj 105255.67033793 62723.524464286 758428.76146667 0 0 0 0 0 68835.066984543 65255.345914682 0 460599.83343 8231.7319588235 75268.211830425 83069.903338333 101255.04133333 0 0 0 763.76101818182 32763.89576087 33494.449778261 851901.09392727 279295.23200717 0 0 224854.4434 0 363633.6907605 254035.06 437064.41 2505.5351219512 33905.11 49599.886052632 0 77362.315 119096.315 0 L24 Constanta 82103.637647059 36916.74 339152.145 1074351.475 153475.01 0 0 0 0 0 0 0 7718.23 69436.534285714 0 0 0 0 0 0 0 0 758835.53 0 0 0 0 0 0 396982.45263158 21417.176 3433.1133333333 0 82001.582 1086503.13 42277.605 0 12770.72 L25 Covasna 0 0 0 0 0 1741979.39 527224.09 0 0 0 0 0 0 24927.05 0 0 0 0 0 0 0 0 229552.37 0 0 0 0 0 0 110143.158 279782.28 3691.3736363636 0 65651.525 0 0 0 0 L26 Dambovita 0 0 0 0 0 812694.02 0 0 0 0 0 0 0 30435.593333333 0 0 0 0 0 0 0 0 1319078.6 0 0 0 0 0 0 304429.40461538 131103.16625 2553.819 0 50683.25 0 60011.675714286 0 0 L27 Dolj 0 0 380397.105 0 0 1036563.08 0 0 46047.355 0 0 0 0 36460.289473684 0 0 0 0 0 0 0 0 622143.89333333 0 0 0 0 0 886101.32666667 363351.70769231 200066.425 2200.87 9056.01 90851.13 372818.69666667 0 0 0 L28 Galati 0 30563.426153846 0 0 0 744204.55 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 302447.32625 12048.417142857 3394.7 2091.95 83927.15375 1011913.33 21829.49 0 0 L29 Giurgiu 0 0 0 0 0 0 1163621.67 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 276542.97166667 38495.92 1666.335 11797.84 0 0 0 0 0 L30 Gorj 0 0 0 0 0 0 0 0 81363.26 0 0 0 0 0 0 0 0 0 0 0 0 0 1278706.02 0 0 0 0 0 0 272479.25 37127.1 2680.1477777778 0 121261.08 0 0 0 0 L31 Harghita 39654.09 34559.17625 0 0 0 0 0 0 11645.94 0 0 0 3350.29 74259.83625 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 8282.66 913350.69 3952.2223076923 1372.12 90851.13 0 1237416 0 0 L32 Hunedoara 0 0 0 0 0 0 0 0 114149.52 0 0 0 0 36102.13625 0 0 0 0 0 0 0 0 0 0 0 0 0 0 380125.94 8008.69 0 3115.5491666667 4021.2 72582.566666667 0 0 0 4161.16 L33 Ialomita 0 50841.96 0 1041795.84 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 635601.42 0 0 0 0 0 0 231933.608 556148.06666667 3247.8657142857 0 84534.63 0 0 0 0 L34 Iasi 58558.905769231 58746.649 456616.43333333 1505397.78 0 0 0 33278.66 57822.998 17684.99245614 0 458512.48538462 12257.936956522 50812.945625 111916.39 185835.276 0 0 0 377.26090909091 14985.823928571 15282.243214286 476541.036 0 0 0 307737.73095 303038.84571429 999808.45 150412.02055556 634532.46923077 2342.3610344828 0 66835.267142857 0 0 126078.79333333 17487.96 L35 Maramures 79765.815 62282.633333333 0 0 0 0 0 0 28980.130714286 0 0 723477.035 0 63390.28172043 0 0 0 0 0 0 0 0 914756.19333333 0 0 0 0 0 0 61030.001666667 0 3383.6047619048 22605.425 81045.55 0 708595.215 20006.25 0 L36 Mehedinti 0 0 0 0 0 0 0 0 0 0 0 0 0 59415.416666667 0 0 0 0 0 0 0 0 1206892.35 0 0 0 0 0 0 1004121.36 0 3194.879 0 66479 0 9182.24 0 0 L37 Mures 85493.937894737 58457.188666667 511684.07 1266337.9 0 0 0 0 47134.227 33145.26505618 0 48509.47 7527.34 48116.361071429 0 0 0 0 0 432.17571428571 5875.4985714286 6307.6742857143 478182.352 0 0 0 0 0 0 395029.13416667 194400.1 2850.8682758621 0 74909.444 1086503.13 737103.73 0 0 L38 Neamt 195787.685 43758.265 289487.7775 0 0 0 0 0 0 0 0 0 0 117649.14 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 119746.86538462 821340.59 1811.5554545455 29700.56 57365.26 0 335049.532 0 0 L39 Olt 0 0 0 0 147135.66 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 705539.265 0 0 0 0 0 0 475851.73 575083.035 4698.3457142857 0 111029.75 0 195876.66 0 25685 L40 Prahova 0 0 0 0 0 0 0 0 0 0 0 0 0 72052.957407407 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 272502.565 418244.945 3101.105 7741.88 80714.48 1457558.88 69420.803333333 0 0 L41 Satu Mare 56101.916666667 52366.511 0 0 0 0 0 0 85228.76 0 0 0 0 29020.323333333 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 925258.44 120885.91166667 3394.8342857143 0 83580.9 886533.44 35370.82 0 0 L42 Salaj 0 0 0 0 0 0 0 0 57210.35 0 0 0 0 78182.036666667 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 4033.1733333333 23104.44 0 0 69981.9225 0 0 L43 Sibiu 0 0 0 0 0 0 0 0 77876.29 0 0 0 0 75722.75969697 0 113978.592 0 0 0 0 0 0 609827.635 205767.41 0 0 730894.7 0 0 131349.138 27041.02 2359.25 0 0 2420112.48 21712.8 138295.835 0 L44 Suceava 68920.742222222 49001.747 750859.18 0 0 477741.35 0 0 0 0 1396474.13875 591910.52 0 26642.831666667 0 0 0 0 0 0 0 0 1532196.27 0 0 0 0 0 0 456540.78 39427.1 3201.1841666667 0 92987.687142857 2566795.02 63657.502222222 0 0 L45 Teleorman 0 0 97258.87 0 0 2181301.755 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1399823.76 0 0 0 0 0 0 27262.267142857 30246.6625 2184.33 0 0 0 0 0 0 L46 Timis 100916.69157895 64433.029245283 134335.12 1609216.04 18659.92 2316611.22 0 0 93363.5875 47547.845576923 0 155540.68 0 48495.035753425 28655.996666667 150544.32 0 0 0 364.38875 19256.09125 19620.48 771192.77857143 0 1071653.3 0 136313.742 0 1133169.245 312330.73714286 461150.18368421 2961.1703030303 11398.37 60561.243461538 0 513955.605 0 0 L47 Tulcea 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 170187.22 551313.02 2538.3 0 0 2175953.62 10856.4 0 0 L48 Vaslui 0 0 547898.35 0 0 0 0 0 0 0 0 0 0 27255.66 0 0 0 0 0 0 0 0 1411078.5 0 0 0 0 0 0 166417.15166667 25547.85 3696.5166666667 6174.54 83845.99 0 0 238192.63 0 L49 Valcea 0 0 0 0 0 0 0 0 0 0 0 0 0 23378.2325 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 425086.388 497668.19 1904.1 0 121166.4 0 19090.88 0 0 L50 Vrancea 0 0 514214.235 0 0 0 0 0 0 0 0 0 0 79548.97 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 509645.948 0 2490.2233333333 0 121166.4 0 291484.93 0 9649.82 L51 Bucuresti 70782.758736264 61082.798 310968.85948718 136672.95 0 975119.14 0 0 43171.106 41520.357685185 254592.19 518315.31904762 9076.2501960784 43988.012307692 105857.41 86380.618965517 775.235 21653.282222222 10286.6415 743.74733333333 11254.1540625 11589.253030303 1269410.1041667 159295.72166667 1751756 2601517.2933333 763557.42631579 0 544863.74785714 278125.326125 203599.16604938 2150.0508196721 10219.240555556 62071.738787879 1417712.61875 296329.82909091 114229.2025 11210.2 L52 Ilfov 0 0 0 0 0 0 0 0 0 0 0 0 0 27255.61 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 164828.88142857 229245.2225 1743.925 0 43363.423333333 128631.685 41149.08 0 0 L53 AOPSNAJ 76006.804285714 71676.22 216321.50666667 1615747.89 0 0 0 0 85949.216551724 0 0 729658.44 0 58240.679917355 0 0 0 0 0 0 0 0 537878.84607143 0 0 0 0 0 0 185544.41156716 189456.42492958 2203.6666257669 6556.7577777778 49195.67 912144.19888889 208328.96392857 20006.24 13285.524 L54 Total 83771.838507579 57129.977872493 347214.17432195 1215560.866 114778.2 1253202.2076471 753086.2775 33278.66 70044.90472294 44388.991369512 907096.16071429 478074.08940241 8855.2516581281 55329.814556969 89224.232002 100075.26207407 775.235 21653.282222222 10286.6415 599.49710561798 17637.579821429 17998.364291919 1047002.955997 200220.10866871 1298354.2 2601517.2933333 567764.97808387 303038.84571429 672701.68776184 253023.81837651 233764.24443038 2713.2649365629 10683.631 62054.928440367 1248446.9686111 274679.55022388 110792.35736842 13682.033076923 L55 Total/CNP 87404.800891837 57625.324501445 424948.69096119 1215560.866 114778.2 1253202.2076471 753086.2775 33278.66 71376.556903985 44451.687685006 907096.16071429 516320.0165546 9218.5440338462 74052.953625564 89224.232002 102608.81301266 775.235 21653.282222222 10286.6415 599.49710561798 17637.579821429 17998.364291919 1159027.9636346 200220.10866871 1298354.2 2601517.2933333 586690.47735333 303038.84571429 954802.39553294 355584.44378641 323989.04052632 3267.2231944444 12140.489772727 70703.698954704 1664595.9581481 292119.52166667 110792.35736842 14822.2025