Indicatori PNS 2023- (2) / Boli rare-cost mediu-TRIM III 2023.xlsx

COST MEDIU boli rare L2 Programul naţional de diagnostic şi tratament pentru boli rare L3 Situaţia indicatorilor fizici realizaţi în perioada 01.01.2023-30.09.2023 L5 Lei L7 CAS Cost mediu/bolnav cu: L8 Boli neurologice degenerative/ inflamator-imune forme cronice Boli neurologice degenerative/ inflamator-imune forme acute Boala Fabry( circuit închis + circuit deschis) Boala Pompe Tirozinemie Mucopolizaharidoză tip II (sindromul Hunter) Mucopolizaharidoză tip I (sindromul Hurler) Afibrinogenemie congenitală Sindrom de imunodeficienţă primară HTPA Amiloidoză cu transtiretină: Scleroză sistemică şi ulcerele digitale evolutive Purpura trombocitopenică imună cronică( circuit închis + circuit deschis) Hiprerfenilalaninemie la bolnavii diagnosticaţi cu fenilcetonurie sau deficit de tetrahidrobiopterină (BH4) Scleroza tuberoasă Osteogeneză imperfectă Epidermoliză buloasă Atrofie musculară spinală( circuit închis + circuit deschis) Boala Castelman Mucopolizaharidoza Tip IVA Lipofuscinoza ceroida TIP 2 (TPP1) Sindrom hemolitic uremic atipic (SHUa) Hemoglobinurie paroxistică nocturnă(HPN) Mucoviscidoză copii Mucoviscidoză adulţi Scleroză laterală amiotrofică Sindrom Prader Willi fibroză pulmonară idiopatică distrofie musculară Duchenne angioedem ereditar Neuropatie optică ereditară Leber Limfangioleiomiomatoză L9 afectare neurologică afectare cardiacă sau formă mixtă medicamente materiale sanitare Total medicamente materiale sanitare Total bolnav adult / copil cu greutate > 40 Kg bolnav copil cu greutate < 40 Kg L10 C0 C1 C2 C3 C4 C5 C6 C7 C8 C9 C10 C11 C12 C13 C14 C15 C16 C17 C18 C19 C20 C21 C22 C23 C24 C25 C26 C27 C28 C29 C30 C31 C32 C33 C34 C35 C36 C37 C38 L11 Alba 0 0 0 0 0 0 0 0 0 0 0 0 0 20601.14 0 0 0 0 0 0 0 0 911601.21 0 0 0 0 0 0 478366.12333333 0 2568.516 0 28800.578333333 0 1204512.875 178173.88 0 L12 Arad 0 0 0 0 0 1190629.235 0 0 0 0 0 0 5999.346 72660.5475 0 0 0 0 0 0 0 0 650607.78 0 0 0 0 0 825911.53 857949.51 9786.13 2486.02 0 50109.8775 813210.84 1240824.09 0 14259.39 L13 Arges 0 0 405632.745 0 103980.78 1684562.24 0 0 0 0 0 0 0 30503.375833333 0 0 0 0 0 0 0 0 1036470.54 0 0 0 0 0 0 321778.15 49946.557 2553.4733333333 0 13483.97 0 540183.01666667 0 0 L14 Bacau 31158.02 32475.84 404515.77 0 0 0 0 0 0 0 0 0 0 59563.77 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 58756.098888889 116733.16428571 3036.1433333333 0 64072.543333333 0 676173.91 0 0 L15 Bihor 138084.99571429 62999.24 0 0 0 0 518281.875 0 91590.6825 8747.118 0 0 0 74937.550909091 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 289016.25 242882.495 2330.6581481481 0 51418.282 843894.08 49991.936666667 0 0 L16 Bistrita-Nasaud 0 0 0 0 0 0 0 0 0 0 0 0 0 40513.546666667 0 0 0 0 0 0 0 0 529490.04 0 0 0 0 0 0 0 0 2360.53 0 45788.6 0 732932.58 0 0 L17 Botosani 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 562359.44 0 0 0 0 0 0 166219.5675 0 2857.055 0 10041.97 0 74282.64 0 0 L18 Brasov 0 0 89765.34 0 0 1200352.985 0 0 79266.781428571 0 0 48519.28 0 16981.58 0 74898.25 0 0 0 0 0 0 782980.25 0 0 0 0 0 1006179 186433.30555556 80491.265714286 2373.4061904762 0 47321.31 0 134940.8925 65880.75 0 L19 Braila 0 26296.066 0 0 0 0 0 0 0 0 0 0 0 27694.926923077 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 410118.971 489580.56 2551.36625 7815.5 10136.65 1762912.98 0 0 0 L20 Buzau 0 0 0 0 0 0 0 0 67988.39 0 0 0 0 70946.933333333 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 9606.5766666667 0 2208.4542857143 0 0 661489.28 0 0 0 L21 Caras-Severin 0 0 0 1206478.98 0 0 0 0 0 0 0 0 0 81305.215 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 3404.6455555556 0 8164.49 2439632.52 9980.87 0 0 L22 Calarasi 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 369368.765 0 1946.315 0 65163.86 0 136624.195 0 0 L23 Cluj 85143.602440816 56498.805080645 550752.72916667 0 0 0 0 0 53833.055387987 50673.071153802 0 494339.14346625 6866.53473125 64956.449912763 109520.42012829 106897.44232 0 0 0 589.442025 25860.391022727 26396.247409091 620371.12090909 197565.03367383 0 0 65954.5484 0 381950.609985 206061.66 354910.65285714 1986.8408571429 26756.31 46036.465666667 0 77362.315 178173.88 0 L24 Constanta 73009.823333333 34608.625 279408.42 811436.68 108796.77 0 0 0 0 0 0 0 5692.3725 64600.731666667 0 0 0 0 0 0 0 0 352270.332 0 0 0 0 0 0 288934.18421053 8979.2908333333 2556.6816666667 0 70743.49 813210.84 27189.62 0 9434.48 L25 Covasna 0 0 0 0 0 1378848.22 429246.61 0 0 0 0 0 0 29027.62 0 0 0 0 0 0 0 0 148807.21 0 0 0 0 0 0 10102.338 271913.56333333 2820.93 0 50588.57 0 0 0 0 L26 Dambovita 0 0 0 0 0 643976.84 0 0 0 0 0 0 0 23568.543333333 0 0 0 0 0 0 0 0 1036470.54 0 0 0 0 0 0 238296.52083333 107769.65875 2013.7733333333 0 50683.25 0 47862.895714286 0 0 L27 Dolj 0 0 299824.885 0 0 750174.05 0 0 32093.61 0 0 0 0 41757.783333333 0 0 0 0 0 0 0 0 921307.14666667 0 0 0 0 0 687689.35666667 320247.126 195927.285 2438.3994117647 7715.61 70767.19 723700.56 0 0 0 L28 Galati 0 30563.426153846 0 0 0 520738.2 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 248530.75142857 260.02166666667 2472.9135294118 2091.95 70596.192857143 738621.04 21712.8 0 0 L29 Giurgiu 0 0 0 0 0 0 792418.33 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 196274.784 38495.92 1214.33 9031.02 0 0 0 0 0 L30 Gorj 0 0 0 0 0 0 0 0 57419.35 0 0 0 0 0 0 0 0 0 0 0 0 0 955725.38 0 0 0 0 0 0 204603.725 25179.5 2022.1925 0 101177.14 0 0 0 0 L31 Harghita 39755.956666667 34365.601428571 0 0 0 0 0 0 0 0 0 0 3701.86 54991.0225 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 6279.9666666667 669484.01 3044.4 1372.12 70767.19 0 989768.3 0 0 L32 Hunedoara 0 0 0 0 0 0 0 0 79052.82 0 0 0 0 19704.78 0 0 0 0 0 0 0 0 463303.785 0 0 0 0 0 67159.701 7888.36 0 1772.4566666667 0 54667.791666667 0 0 0 4161.16 L33 Ialomita 0 50841.96 0 802756.23 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 433738.52 0 0 0 0 0 0 224639.404 555878.06666667 2340.0014285714 0 60307.605 0 0 0 0 L34 Iasi 44468.245 58232.960909091 481456.54 1146781.46 0 0 0 33278.66 48559.068333333 14423.464909091 0 436548.273 9806.5171428571 44340.463541667 74273.46 163366.256 0 0 0 313.88380952381 11956.622142857 12192.035 476541.036 0 0 0 364680.685 261012.32727273 756965.54333333 114528.04787879 492332.62 1907.2920833333 0 51270.367692308 0 0 72728.793333333 12483.6 L35 Maramures 64588.044285714 63085.485714286 0 0 0 0 0 0 28343.935 0 0 578445.995 0 45171.7312 0 0 0 0 0 0 0 0 827104.46 0 0 0 0 0 0 18736.11 0 2657.787 16844.385 62713.639 0 522859.38 0 0 L36 Mehedinti 0 0 0 0 0 0 0 0 0 0 0 0 0 37651.56 0 0 0 0 0 0 0 0 904098 0 0 0 0 0 0 832786.5 0 2549.5322222222 0 48150.85 0 9182.24 0 0 L37 Mures 82489.293125 49299.14 352517.56 992854.725 0 0 0 0 38010.847 28735.495 0 0 0 40434.125769231 0 0 0 0 0 287.00571428571 4348.6828571429 4635.6885714286 429735.26 0 0 0 0 0 0 296539.89363636 191529.825 2263.2269230769 0 60649.442 813210.84 1102735.79 0 0 L38 Neamt 143376.555 36853.96 297492.07 0 0 0 0 0 0 0 0 0 0 82106.01 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 75075.981538462 740146.5 1572.57 19870.96 49999.766666667 0 219530.78 0 0 L39 Olt 0 0 0 0 110081.77 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 584421.525 0 0 0 0 0 0 419987.77333333 429279.475 3412.2 0 80903.84 0 147845.835 0 19012.52 L40 Prahova 0 0 0 0 0 0 0 0 0 0 0 0 0 70091.0895 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 203703.5125 327972.02727273 2526.8811764706 4571.27 55609.555 364389.72 58447.716666667 19737.34 0 L41 Satu Mare 52525.815 52366.511 0 0 0 0 0 0 65262.866666667 0 0 0 0 7677.04 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 671021.11 86817.188 2636.675 0 60354.42375 886533.44 27141 0 0 L42 Salaj 0 0 0 0 0 0 0 0 57210.35 0 0 0 0 59863.2 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2885.7333333333 15062.04 0 0 52931.68 0 0 L43 Sibiu 0 0 0 0 0 0 0 0 50995.778 0 0 0 0 71382.038 0 97599.294 0 0 0 0 0 0 490835.046 84425.153333333 0 0 330093.42 0 0 6671.1 23775.55 1811.39 0 0 1941797.835 21712.8 138295.835 0 L44 Suceava 61011.948571429 50701.085714286 607115.34 0 0 577256.69 0 0 0 0 1104840.579375 446588.12 0 17932 0 0 0 0 0 0 0 0 1168843.05 0 0 0 0 0 0 345499.78 33700.8 2422.7971428571 0 75012.421666667 1883458.02 50550.753333333 0 0 L45 Teleorman 0 0 97258.87 0 0 1664117.77 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1036470.5 0 0 0 0 0 0 18014.798571429 21295.205 1975.4125 0 0 0 0 0 0 L46 Timis 89614.424666667 64460.080263158 48629.26 1228525.1 0 1787875.78 0 0 67627.911851852 39021.256382979 0 0 0 44973.881016949 22073.39 122091.78833333 0 0 0 75.385 12861.72625 12937.11125 565434.49 0 856822.415 0 148542.52666667 0 836580.325 289879.08736842 404829.14611111 2337.8268965517 9228.1985714286 49758.557916667 0 384187.96166667 0 0 L47 Tulcea 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 113341.3375 384717.56 1743.915 0 0 1492616.6 10856.4 0 0 L48 Vaslui 0 0 404308.86 0 0 0 0 0 0 0 0 0 0 13592.4 0 0 0 0 0 0 0 0 1168843 0 0 0 0 0 0 145884.244 17093.4 2516.85875 6174.54 43678.11 0 0 178173.88 0 L49 Valcea 0 0 0 0 0 0 0 0 0 0 0 0 0 33001.45 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 320976.824 355297.04 2061.4675 0 91040.49 0 19090.88 0 0 L50 Vrancea 0 0 398248.8275 0 0 0 0 0 0 0 0 0 0 81582.301428571 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 355009.874 0 2055.3683333333 0 91040.49 0 131998.5 0 7425.66 L51 Bucuresti 68088.319421769 60253.304065934 374924.32022083 50757.48 0 730699.72 0 0 33113.136060606 33012.811093248 553818.2599 451612.15906611 7442.9879591837 45609.695931296 89692.264828923 80472.669364151 726.01357142857 19654.153333333 7116.0622222222 670.33392857143 9235.3651724138 9553.1646666667 1019607.839131 123983.37831818 1405565.04 1944845.7866667 718128.73333333 0 731125.15066667 238524.66085714 163909.05657534 1776.6835576923 8105.5485714286 51770.331 1178555.29625 263954.25555556 148433.415 7873.975 L52 Ilfov 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 121823.53571429 305615.29666667 1214.335 0 41588.715 128631.685 13716.36 0 0 L53 AOPSNAJ 57860.941428571 71676.22 185481.12 1196817.01 0 0 0 0 65294.134363636 0 0 530660.7 0 49986.877052632 0 0 0 0 0 0 0 0 368007.95 0 0 0 0 0 0 144987.80871795 167791.59393443 1772.6081294964 4820.53125 43837.276730769 653999.39111111 172612.97884615 0 11672.0625 L54 Total 75352.210876786 55181.535641264 333235.19750476 924069.907 107619.77333333 1156023.6942857 564557.1725 33278.66 54608.718468729 35417.348992091 994636.11548 444813.54025395 8325.2287508982 49070.015871584 89176.635811913 92157.538905333 726.01357142857 19654.153333333 7116.0622222222 473.35560119048 13881.640452128 14154.063926316 846067.663475 140124.14117715 1039736.6233333 1944845.7866667 561043.99629091 261012.32727273 717536.66936617 202348.19382409 198657.89363309 2177.1763892617 8429.3588636364 51077.637728814 990946.37323529 220357.87095238 110253.29357143 10767.750833333 L55 Total/CNP 75803.421720359 55387.436893657 333235.19750476 924069.907 107619.77333333 1244948.5938462 564557.1725 33278.66 54827.153342604 35523.072421918 994636.11548 444813.54025395 7434.8299540107 61757.63983838 89176.635811913 92157.538905333 726.01357142857 19654.153333333 7116.0622222222 473.35560119048 13881.640452128 14154.063926316 846067.663475 140124.14117715 1039736.6233333 1944845.7866667 617148.39592 261012.32727273 717536.66936617 225166.1816383 215730.05636719 2307.2495163585 9046.1412195122 54396.762202166 1052880.5215625 223912.03016129 118734.31615385 10767.750833333