Indicatori PNS 2023-(1) / Boli rare-cost mediu-6 LUNI 2023.xlsx

COST MEDIU boli rare L2 Programul naţional de diagnostic şi tratament pentru boli rare L3 Situaţia indicatorilor fizici realizaţi în perioada 01.01.2023-30.06.2023 L5 Lei L7 CAS Cost mediu/bolnav cu: L8 Boli neurologice degenerative/ inflamator-imune forme cronice Boli neurologice degenerative/ inflamator-imune forme acute Boala Fabry( circuit închis + circuit deschis) Boala Pompe Tirozinemie Mucopolizaharidoză tip II (sindromul Hunter) Mucopolizaharidoză tip I (sindromul Hurler) Afibrinogenemie congenitală Sindrom de imunodeficienţă primară HTPA Amiloidoză cu transtiretină: Scleroză sistemică şi ulcerele digitale evolutive Purpura trombocitopenică imună cronică( circuit închis + circuit deschis) Hiprerfenilalaninemie la bolnavii diagnosticaţi cu fenilcetonurie sau deficit de tetrahidrobiopterină (BH4) Scleroza tuberoasă Osteogeneză imperfectă Epidermoliză buloasă Atrofie musculară spinală( circuit închis + circuit deschis) Boala Castelman Mucopolizaharidoza Tip IVA Lipofuscinoza ceroida TIP 2 (TPP1) Sindrom hemolitic uremic atipic (SHUa) Hemoglobinurie paroxistică nocturnă(HPN) Mucoviscidoză copii Mucoviscidoză adulţi Scleroză laterală amiotrofică Sindrom Prader Willi fibroză pulmonară idiopatică distrofie musculară Duchenne angioedem ereditar Neuropatie optică ereditară Leber Limfangioleiomiomatoză L9 afectare neurologică afectare cardiacă sau formă mixtă medicamente materiale sanitare Total medicamente materiale sanitare Total bolnav adult / copil cu greutate > 40 Kg bolnav copil cu greutate < 40 Kg L10 C0 C1 C2 C3 C4 C5 C6 C7 C8 C9 C10 C11 C12 C13 C14 C15 C16 C17 C18 C19 C20 C21 C22 C23 C24 C25 C26 C27 C28 C29 C30 C31 C32 C33 C34 C35 C36 C37 C38 L11 Alba 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 617738.38 0 0 0 0 0 0 280400.95 0 1688.07 0 28066.9025 0 761882.98 118424.04 0 L12 Arad 0 0 0 0 0 789371.95 0 0 0 0 0 0 3582.162 54672.425714286 0 0 0 0 0 0 0 0 397117.53 0 0 0 0 0 577823.33 609557.79 9786.13 1754.0433333333 0 35821.095714286 540870.84 841496.58 0 9362.7 L13 Arges 0 0 255581.6625 0 78880.25 1142093.25 0 0 0 0 0 0 0 26231.804444444 0 0 0 0 0 0 0 0 661862.55 0 0 0 0 0 0 205133.11125 31994.88 1839.8963636364 0 15204.97 0 278497.9 0 0 L14 Bacau 31158.02 32475.84 285302.52 0 0 0 0 0 0 0 0 0 0 52696.71 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 60072.17 92825.7 2161.499 0 47304.366666667 0 495859.32 0 0 L15 Bihor 111570.16210526 69836.672 0 0 0 0 349197.005 0 59798.875 7504.5788888889 0 0 0 66040.784 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 177958.27 193416.11 1766.2940909091 0 39979.134444444 480774.08 28950.4 0 0 L16 Bistrita-Nasaud 0 0 0 0 0 0 0 0 0 0 0 0 0 34657.424666667 0 0 0 0 0 0 0 0 529490.04 0 0 0 0 0 0 0 0 1457.194 0 31365.5625 0 732932.58 0 0 L17 Botosani 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 352993.36 0 0 0 0 0 0 125962.08571429 0 2023.8875 0 0 0 43425.6 0 0 L18 Brasov 0 0 0 0 0 836543.06 0 0 52628.695714286 0 0 0 0 11997.525333333 0 64195.05 0 0 0 0 0 0 529490 0 0 0 0 0 654016.35 127561.75428571 8317.7966666667 1609.4671428571 0 30562.838 0 28518.335 39474.67 0 L19 Braila 0 24148.9925 0 0 0 0 0 0 0 0 0 0 0 19119.834545455 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 270091.12666667 489580.56 1908.2357142857 6097.315 10136.65 1172524.2 0 0 0 L20 Buzau 0 0 0 0 0 0 0 0 44844.52 0 0 0 0 53826.2 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 10640.285 0 1803.0872727273 0 0 661489.28 0 0 0 L21 Caras-Severin 0 0 0 785184.93 0 0 0 0 0 0 0 0 0 51342.12 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2293.7477777778 0 8164.49 1622612.52 7237.6 0 0 L22 Calarasi 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 246406.83 0 1214.34 0 40822.5 0 97707.6 0 0 L23 Cluj 73345.750626316 55566.2925 373916.15043333 0 0 0 0 0 40201.189310871 37818.153657643 0 347408.397165 4127.3286258065 44699.069193803 70189.014179143 88097.179 0 0 0 459.82014736842 19635.5525 20051.580252381 603744.60571429 128324.1614975 0 0 65954.5484 0 66074.05714 210181.94 245820.365 1538.6227586207 17572.38 35132.686428571 0 71934.115 118424.04 0 L24 Constanta 39082.173 31772.675714286 208070.1 542806.92 82589.16 0 0 0 0 0 0 0 3914.2771428571 44709.443333333 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 200245.31235294 9188.325 2072.1563157895 0 54062.113333333 540870.84 24125.333333333 0 6241.8 L25 Covasna 0 0 0 0 0 902318.27 270033.21 0 0 0 0 0 0 25251.95 0 0 0 0 0 0 0 0 132372.51 0 0 0 0 0 0 8170.45 179870.48 1909.2025 0 35478.275 0 0 0 0 L26 Dambovita 0 0 0 0 0 418163.39 0 0 0 0 0 0 0 9503.245 0 0 0 0 0 0 0 0 661862.55 0 0 0 0 0 0 158828.9525 82225.02 1568.515 0 50683.25 0 33603.142857143 0 0 L27 Dolj 0 0 222642.2425 0 0 530488.39 0 0 20930.615 0 0 0 0 29807.632857143 0 0 0 0 0 0 0 0 558906.15333333 0 0 0 0 0 357346.30333333 192260.083 203251.02 1577.794375 4432.82 50683.25 360580.56 0 0 0 L28 Galati 0 33982.991428571 0 0 0 279266.54 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 190154.31 156.40666666667 1966.06 2091.95 52754.936666667 466281.04 21712.8 0 0 L29 Giurgiu 0 0 0 0 0 0 595080.76 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 92359.28 36.89 1214.33 6659.46 0 0 0 0 0 L30 Gorj 0 0 0 0 0 0 0 0 34252.84 0 0 0 0 0 0 0 0 0 0 0 0 0 661862.55 0 0 0 0 0 0 157652.075 18993.3 1585.3716666667 0 60819.9 0 0 0 0 L31 Harghita 39995.355 35412.6025 0 0 0 0 0 0 0 0 0 0 1060.46 33030.405 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 4227.18 508535.87 2022.6609090909 1372.12 40546.6 0 743788.98 0 0 L32 Hunedoara 0 0 0 0 0 0 0 0 67759.56 0 0 0 0 0 0 0 0 0 0 0 0 0 463303.785 0 0 0 0 0 0 15536.06 0 1571.13 0 47087.284 0 0 0 4161.16 L33 Ialomita 0 50841.96 0 522759.64 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 286807.105 0 0 0 0 0 0 145590.57 390178.09333333 1821.4983333333 0 48068.84 0 0 0 0 L34 Iasi 31112.793888889 56167.4015 321016.69 784814.03 0 0 0 33278.66 38943.238888889 9719.1198113208 0 291968.492 6082.189 37163.701956522 61894.55 107364.498 0 0 0 221.82894736842 8449.9646428571 8600.4914285714 476541.036 0 0 0 82472.67 220664.875 628252.468 79589.245757576 420903.86909091 1386.4547619048 0 41216.816 0 0 49343.35 7802.25 L35 Maramures 45441.736 47945.58 0 0 0 0 0 0 22391.496666667 0 0 397702.63 0 41261.441585366 0 0 0 0 0 0 0 0 639800.465 0 0 0 0 0 0 11909.442 0 1848.4773684211 13219.63 43789.332 0 646965.15 0 0 L36 Mehedinti 0 0 0 0 0 0 0 0 0 0 0 0 0 26061.273333333 0 0 0 0 0 0 0 0 529490.04 0 0 0 0 0 0 503998.52 0 1973.27 0 17930.26 0 9182.24 0 0 L37 Mures 59890.625333333 55597.443333333 291738.67 662494.8 0 0 0 0 29259.476 20153.935769231 0 0 4415.5136363636 33392.607272727 0 0 0 0 0 181.85142857143 2380.5971428571 2562.4485714286 0 0 0 0 0 0 0 228277.01363636 188653.55 1538.1391666667 0 34464.588 540870.84 732932.58 0 0 L38 Neamt 113955 36853.96 214109.82 0 0 0 0 0 0 0 0 0 0 56907.61 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 47879.480833333 496701.6 1304.2888888889 10041.36 31938.93 0 159075.2825 0 0 L39 Olt 0 0 0 0 72157.42 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 397117.53 0 0 0 0 0 0 282400.54 250499.395 2081.7242857143 0 60819.9 0 112894.52 0 12483.6 L40 Prahova 0 0 0 0 0 0 0 0 0 0 0 0 0 63968.726666667 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 150498.15791667 248630.784 1797.6841176471 1649.35 60819.9 0 44034.163333333 19737.34 0 L41 Satu Mare 41630.16 66251.088333333 0 0 0 0 0 0 47918.52 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 419661.53666667 42414.794 1766.2963636364 0 58792.546 751280.32 21712.8 0 0 L42 Salaj 0 0 0 0 0 0 0 0 48838.1 0 0 0 0 58072.58 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1888.9616666667 15062.04 0 0 69668.265 0 0 L43 Sibiu 0 0 0 0 0 0 0 0 40103.6425 0 0 0 0 50570.336190476 0 74756.906 0 0 0 0 0 0 468090.77333333 0 0 0 0 0 0 3924.48 18987.235 1422.4885714286 0 0 1397320.49 21712.8 128292.71 0 L44 Suceava 48144.658333333 38625.866 428194.74 0 0 388814.09 0 0 0 0 733655.20875 265468.74 0 12535.11 0 0 0 0 0 0 0 0 794235.06 0 0 0 0 0 0 217735.286 22408.4 1933.9261111111 0 46465.513333333 1202501.7 39002.622222222 0 0 L45 Teleorman 0 0 48629.43 0 0 1277979.44 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 661862.55 0 0 0 0 0 0 11018.257142857 12377.72 1484.1733333333 0 0 0 0 0 0 L46 Timis 62004.731923077 57517.671111111 0 878666.68 0 1178977.55 0 0 55048.730952381 30314.336444444 0 0 0 44992.916923077 18978.99 70690.538 0 0 0 71.06 7514.71125 7585.77125 396411.2925 0 557956.155 0 148542.52666667 0 487479.475 211368.27777778 299489.32352941 1683.8764 8451.478 36400.122272727 0 302218.82 0 0 L47 Tulcea 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 76508.4225 258317.06 1214.325 0 0 1037058.6 10856.4 0 0 L48 Vaslui 0 0 261393.51 0 0 0 0 0 0 0 0 0 0 6796.2 0 0 0 0 0 0 0 0 794235.06 0 0 0 0 0 0 90769.372 14275.25 1194.0975 6174.54 32703.42 0 0 118424.04 0 L49 Valcea 0 0 0 0 0 0 0 0 0 0 0 0 0 27851.155 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 215208.636 274093.135 1452.7033333333 0 60819.9 0 10861.06 0 0 L50 Vrancea 0 0 288274.9575 0 0 0 0 0 0 0 0 0 0 51895.352857143 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 217517.436 0 1619.1075 0 60819.9 0 79613.6 0 5201.5 L51 Bucuresti 59433.713672269 58203.353125727 316249.43751364 0 0 451790.87 0 0 27534.608686667 22204.873511344 419519.8624 442961.85847182 5374.5899378947 31263.229801743 63871.564828923 57498.660926 566.045 16604.38 4373.0676470588 550.28739130435 7571.766 8078.0304 885847.86288421 80102.369055556 924929.96 1295631.6833333 496402.35 0 485431.23234 165688.01101695 110934.75492308 1353.3774117647 6666.1725 41780.122 1244144.56 195977.74 59212.02 6241.76 L52 Ilfov 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 76335.182857143 376524.615 1214.335 0 32691.46 0 0 0 0 L53 AOPSNAJ 49958.88 0 0 774586.16 0 0 0 0 49141.542363636 0 0 331662.9 0 42084.822698413 0 0 0 0 0 0 0 0 342671.90444444 0 0 0 0 0 0 154502.73318182 169053.53921053 1334.6992982456 3823.0233333333 32298.866938776 520278.965 128193.81136364 0 7607.165 L54 Total 61662.578251095 53881.484707281 290560.07534583 684068.32 77875.61 792835.80357143 390876.995 33278.66 41635.350098075 25132.845324819 670828.13948 359692.29942676 4971.1537445055 38812.14019449 61804.607479565 65403.854947887 566.045 16604.38 4373.0676470588 361.17608947368 10281.141938202 10589.561969663 726839.768525 99391.086032333 680280.75666667 1295631.6833333 386788.70087619 220664.875 491701.51508 150830.49601351 157573.94012987 1604.978734375 6709.5178947368 38572.654555985 835381.8637037 162414.08920354 74394.586923077 7347.0991666667 L55 Total/CNP 61662.578251095 53881.484707281 290560.07534583 684068.32 77875.61 792835.80357143 390876.995 33278.66 41818.765737273 25132.845324819 670828.13948 370592.06607606 4998.6186823204 44872.028254597 61804.607479565 65403.854947887 566.045 16604.38 4373.0676470588 361.17608947368 10281.141938202 10589.561969663 736040.27192405 99391.086032333 680280.75666667 1295631.6833333 427503.30096842 220664.875 491701.51508 164542.35928747 168516.57486111 1681.1561211129 7082.2688888889 40283.538427419 835381.8637037 163864.215 80594.135833333 7347.0991666667