Indicatori PNS 2023-(1) / Boli rare-cost mediu-TRIM I 2023.xlsx

COST MEDIU boli rare L2 Programul naţional de diagnostic şi tratament pentru boli rare L3 Situaţia indicatorilor fizici realizaţi în perioada 01.01.2023-31.03.2023 L5 Lei L7 CAS Cost mediu/bolnav cu: L8 Boli neurologice degenerative/ inflamator-imune forme cronice Boli neurologice degenerative/ inflamator-imune forme acute Boala Fabry( circuit închis + circuit deschis) Boala Pompe Tirozinemie Mucopolizaharidoză tip II (sindromul Hunter) Mucopolizaharidoză tip I (sindromul Hurler) Afibrinogenemie congenitală Sindrom de imunodeficienţă primară HTPA Amiloidoză cu transtiretină: Scleroză sistemică şi ulcerele digitale evolutive Purpura trombocitopenică imună cronică( circuit închis + circuit deschis) Hiprerfenilalaninemie la bolnavii diagnosticaţi cu fenilcetonurie sau deficit de tetrahidrobiopterină (BH4) Scleroza tuberoasă Osteogeneză imperfectă Epidermoliză buloasă Atrofie musculară spinală( circuit închis + circuit deschis) Boala Castelman Mucopolizaharidoza Tip IVA Lipofuscinoza ceroida TIP 2 (TPP1) Sindrom hemolitic uremic atipic (SHUa) Hemoglobinurie paroxistică nocturnă(HPN) Mucoviscidoză copii Mucoviscidoză adulţi Scleroză laterală amiotrofică Sindrom Prader Willi fibroză pulmonară idiopatică distrofie musculară Duchenne angioedem ereditar Neuropatie optică ereditară Leber Limfangioleiomiomatoză L9 afectare neurologică afectare cardiacă sau formă mixtă medicamente materiale sanitare Total medicamente materiale sanitare Total bolnav adult / copil cu greutate > 40 Kg bolnav copil cu greutate < 40 Kg L10 C0 C1 C2 C3 C4 C5 C6 C7 C8 C9 C10 C11 C12 C13 C14 C15 C16 C17 C18 C19 C20 C21 C22 C23 C24 C25 C26 C27 C28 C29 C30 C31 C32 C33 C34 C35 C36 C37 C38 L11 Alba 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 308869.19 0 0 0 0 0 0 143795.73666667 0 1198.14 0 20464.4175 0 382750.89 59212.02 0 L12 Arad 0 0 0 0 0 363361.69 0 0 0 0 0 0 4197.845 23854.936666667 0 0 0 0 0 0 0 0 132372.51 0 0 0 0 0 280891.31 356161.38 9786.13 1052.426 0 20006.442 270435.42 420748.29 0 4681.35 L13 Arges 0 0 127789.845 0 39440.12 564771.39 0 0 0 0 0 0 0 18515.0725 0 0 0 0 0 0 0 0 264745.02 0 0 0 0 0 0 78463.75 13802.07 1092.899 0 10136.64 0 201334.905 0 0 L14 Bacau 0 0 142651.26 0 0 0 0 0 0 0 0 0 0 35599.92 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 21265.357142857 55308.632 1122.575 0 27031.066666667 0 373703.89 0 0 L15 Bihor 70069.977857143 59618.98 0 0 0 0 176436.38 0 28007.0675 4893.2325 0 0 0 39982.101111111 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 79954.26875 93142.005 1119.0852941176 0 20814.40125 240387.04 21712.8 0 0 L16 Bistrita-Nasaud 0 0 0 0 0 0 0 0 0 0 0 0 0 29833.627 0 0 0 0 0 0 0 0 264745.02 0 0 0 0 0 0 0 0 809.55 0 15842.05 0 488621.72 0 0 L17 Botosani 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 264745.02 0 0 0 0 0 0 50927.281428571 0 1113.1425 0 0 0 21712.8 0 0 L18 Brasov 0 0 0 0 0 466867.395 0 0 26258.566666667 0 0 0 0 13377.315714286 0 33223.2 0 0 0 0 0 0 264745.02 0 0 0 0 0 352162.65 63745.603125 5363.356 989.45222222222 0 23652.173333333 0 17661.935 32895.56 0 L19 Braila 0 29272.43 0 0 0 0 0 0 0 0 0 0 0 21692.275 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 120837.10333333 244790.28 1011.9433333333 2428.15 10136.65 586262.1 0 0 0 L20 Buzau 0 0 0 0 0 0 0 0 21821.63 0 0 0 0 32295.72 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 10550.1 0 1169.3488888889 0 0 165372.32 0 0 0 L21 Caras-Severin 0 0 0 422909.48 0 0 0 0 0 0 0 0 0 35669.393333333 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1259.3122222222 0 0 811306.26 3618.8 0 0 L22 Calarasi 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 124011.675 0 1011.95 0 16329 0 48853.8 0 0 L23 Cluj 56701.786584615 57271.383392857 185010.09253333 0 0 0 0 0 22763.542810129 21561.755381978 0 189065.79470571 2382.597864 27116.296569475 43350.917350286 51348.75005 0 0 0 302.40062631579 11661.2265 11948.507095 337648.61833333 47599.477158833 0 0 65954.5484 0 0 141055.5775 132469.01 1009.5995652174 8786.19 20727.140454545 0 71934.115 59212.02 0 L24 Constanta 22003.725 47306.713333333 136731.78 271403.46 39886.81 0 0 0 0 0 0 0 1937.1966666667 28938.748 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 113621.56428571 3400.505 1192.395 0 35478.26 270435.42 13268.933333333 0 3120.9 L25 Covasna 0 0 0 0 0 451159.14 110819.81 0 0 0 0 0 0 12710.85 0 0 0 0 0 0 0 0 88248.34 0 0 0 0 0 0 8294.485 91128.4 1052.42 0 20273.3 0 0 0 0 L26 Dambovita 0 0 0 0 0 217440.33 0 0 0 0 0 0 0 8241.25 0 0 0 0 0 0 0 0 397117.53 0 0 0 0 0 0 75742.891818182 41584.11 910.75 0 30409.95 0 21195.828571429 0 0 L27 Dolj 0 0 109836.84 0 0 254504.97 0 0 4186.13 0 0 0 0 25653.57 0 0 0 0 0 0 0 0 397117.53 0 0 0 0 0 181411.58 87224.523333333 250176.41 1144.6241666667 1810.125 20273.3 240387.04 0 0 0 L28 Galati 0 28547.2075 0 0 0 126743.48 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 122604.056 114.17 1079.4058333333 2091.95 22829.64 225681.54 10856.4 0 0 L29 Giurgiu 0 0 0 0 0 0 286520.36 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 38173.098 36.89 1214.33 3329.73 0 0 0 0 0 L30 Gorj 0 0 0 0 0 0 0 0 18549.75 0 0 0 0 0 0 0 0 0 0 0 0 0 352993.36 0 0 0 0 0 0 89583.2875 9537.15 843.285 0 40546.6 0 0 0 0 L31 Harghita 52025.03 30738.12 0 0 0 0 0 0 0 0 0 0 0 31123.2175 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 6261.725 255947.46 989.86363636364 1372.12 15204.975 0 377322.69 0 0 L32 Hunedoara 0 0 0 0 0 0 0 0 33879.78 0 0 0 0 0 0 0 0 0 0 0 0 0 397117.53 0 0 0 0 0 0 0 0 867.37428571429 0 25570.972 0 0 0 3120.87 L33 Ialomita 0 0 0 281485.96 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 176496.68 0 0 0 0 0 0 89080.242 168374.99333333 944.48166666667 0 22344.98 0 0 0 0 L34 Iasi 36008.731666667 49345.18 160480.32 362275.44 0 0 0 33278.66 22876.754285714 4777.6862 0 125340.00888889 2444.9738888889 21750.630238095 24757.82 58033.9 0 0 0 157.77157894737 5404.5480769231 5519.8426923077 264745.02 0 0 0 0 125341.37 291206.962 40792.247 257506.79777778 910.688125 0 21959.185 0 0 59212.02 3120.9 L35 Maramures 20265.37 47254.2475 0 0 0 0 0 0 17744.714285714 0 0 198977.21 0 25307.835 0 0 0 0 0 0 0 0 375055.445 0 0 0 0 0 0 5699.002 0 1085.305625 6609.815 28294.75125 0 262404.86 0 0 L36 Mehedinti 0 0 0 0 0 0 0 0 0 0 0 0 0 21530.48 0 0 0 0 0 0 0 0 198558.765 0 0 0 0 0 0 335418.92 0 1156.4914285714 0 0 0 9182.24 0 0 L37 Mures 40220.911 45125.9 145869.33 386455.3 0 0 0 0 11529.813 9649.0926388889 0 0 2939.87 20384.174210526 0 0 0 0 0 141.3725 1839.3925 1980.765 0 0 0 0 0 0 0 125918.299 92796.815 809.54714285714 0 30409.92 270435.42 366466.29 0 0 L38 Neamt 85894.105 36853.96 130854.08 0 0 0 0 0 0 0 0 0 0 29251.74 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 21081.493333333 250075.32 860.15625 10041.36 14280.023333333 0 76643.95 0 0 L39 Olt 0 0 0 0 35379.73 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 264745.02 0 0 0 0 0 0 141158.46 152557.13333333 1079.4116666667 0 30409.95 0 67678.06 0 6241.8 L40 Prahova 0 0 0 0 0 0 0 0 0 0 0 0 0 27284.671111111 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 77065.694090909 170064.38125 957.97 369.97 30409.95 0 25334.186666667 0 0 L41 Satu Mare 27907.486666667 54668.046666667 0 0 0 0 0 0 27601.243333333 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 194322.28333333 30207.09 1092.897 0 28382.608 360580.56 39806.8 0 0 L42 Salaj 0 0 0 0 0 0 0 0 23721.36 0 0 0 0 29715.47 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 971.468 7531.02 0 0 37096.74 0 0 L43 Sibiu 0 0 0 0 0 0 0 0 20177.933333333 0 0 0 0 28410.034210526 0 47761.356 0 0 0 0 0 0 351068.08 0 0 0 0 0 0 2093.98 10901.415 874.31 0 0 788787.65 10856.4 69080.69 0 L44 Suceava 35732.675 39640.95 214097.37 0 0 213220.63 0 0 0 0 374020.303125 66339.145 0 23871.23 0 0 0 0 0 0 0 0 397117.53 0 0 0 0 0 0 125626.09555556 16806.3 1023.8435294118 0 27376.018 586262.1 20506.533333333 0 0 L45 Teleorman 0 0 0 0 0 620291.94 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 397117.53 0 0 0 0 0 0 6500.8 6348.905 1416.71 0 0 0 0 0 0 L46 Timis 45239.9336 55029.383 0 386050.44 0 602165.52 0 0 27811.733125 15011.482820513 0 0 0 23050.828571429 18566.4 53841.736 0 0 0 49.54 3914.0825 3920.275 211485.58 0 299302.975 0 107280.71 0 346310.44 114226.3625 174783.71428571 1065.2047368421 3974.705 19792.331 0 184521.0675 0 0 L47 Tulcea 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 38082.9975 193296.87 1214.31 0 0 390841.4 10856.4 0 0 L48 Vaslui 0 0 118815.22 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 397117.53 0 0 0 0 0 0 20406.584 8565.15 1052.4233333333 2058.18 16351.71 0 0 59212.02 0 L49 Valcea 0 0 0 0 0 0 0 0 0 0 0 0 0 22700.86 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 107341.252 274043.21 1079.41 0 30409.95 0 10861.06 0 0 L50 Vrancea 0 0 142651.5225 0 0 0 0 0 0 0 0 0 0 31439.626666667 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 96712.335 0 944.48 0 30409.95 0 32569.2 0 3120.9 L51 Bucuresti 45812.318126582 58961.720678125 171376.22124737 0 0 325976.61 0 0 16401.268969565 10659.6121505 190820.1633 170680.07 3284.7296475 21708.08849 33667.093846154 28054.094912 459.39833333333 17870.01 1798.6761538462 271.98761904762 5438.2047619048 5710.1923809524 347780.0861875 54545.602 462464.98 613720.27 311379.65590909 0 311932.82675455 96833.404038462 61009.930784314 872.19428571429 4705.44 23065.09675 598040.66 101374.6175 59212.02 2340.655 L52 Ilfov 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 31850.992857143 249477.885 809.555 0 20444.75 0 0 0 0 L53 AOPSNAJ 15410.34 0 0 422183.16 0 0 0 0 25063.78 0 0 198997.74 0 26404.145416667 0 0 0 0 0 0 0 0 198262.925 0 0 0 0 0 0 96538.426909091 99593.100967742 886.43069767442 2127.3275 21333.544324324 270465.76714286 58337.58952381 0 3207.5733333333 L54 Total 47776.804616092 53063.207325714 154769.47389318 354513.55555556 38235.553333333 404073.15142857 187553.2325 33278.66 22321.982580041 12777.221558471 337380.27516 158823.29420412 2964.3160935065 24675.247761269 35656.948247818 34850.11294 459.39833333333 17870.01 1798.6761538462 235.4694046875 6666.0165822785 6856.7766063291 311090.28585 50756.806632091 353690.31 613720.27 264692.29881429 125341.37 302403.594215 81352.765126904 90754.846564103 985.49594646271 4001.09 22415.038190476 418439.44576923 87956.309417476 53829.107272727 3428.25 L55 Total/CNP 47776.804616092 53063.207325714 154769.47389318 354513.55555556 38235.553333333 404073.15142857 187553.2325 33278.66 22321.982580041 12777.221558471 337380.27516 158823.29420412 2964.3160935065 26468.82303907 35656.948247818 34850.11294 459.39833333333 17870.01 1798.6761538462 235.4694046875 6666.0165822785 6856.7766063291 311090.28585 50756.806632091 353690.31 613720.27 264692.29881429 125341.37 302403.594215 86163.95016129 96180.408043478 1002.7517120623 4134.4596666667 23074.304019608 418439.44576923 87956.309417476 53829.107272727 3428.25