Indicatori PNS 2024 (4) / Boli rare-cost mediu-AN 2024.xlsx

COST MEDIU boli rare L2 Programul naţional de tratament pentru boli rare L3 Situaţia indicatorilor fizici realizaţi în perioada 01.01.2024-31.12.2024 L5 Lei L7 CAS Cost mediu/bolnav cu: L8 Boli neurologice degenerative/ inflamator-imune forme cronice Boli neurologice degenerative/ inflamator-imune forme acute Boala Fabry( circuit închis + circuit deschis) Boala Pompe Tirozinemie Mucopolizaharidoză tip II (sindromul Hunter) Mucopolizaharidoză tip I (sindromul Hurler) Afibrinogenemie congenitală Sindrom de imunodeficienţă primară HTPA Amiloidoză cu transtiretină: Scleroză sistemică şi ulcerele digitale evolutive Purpura trombocitopenică imună cronică( circuit închis + circuit deschis) Hiprerfenilalaninemie la bolnavii diagnosticaţi cu fenilcetonurie sau deficit de tetrahidrobiopterină (BH4) Scleroza tuberoasă Osteogeneză imperfectă Epidermoliză buloasă Atrofie musculară spinală( circuit închis + circuit deschis) Boala Castelman Mucopolizaharidoza Tip IVA Lipofuscinoza ceroida TIP 2 (TPP1) Sindrom hemolitic uremic atipic (SHUa) Hemoglobinurie paroxistică nocturnă(HPN) Deficit de sfingomielinază acidă (DSMA) Mucoviscidoză copii Mucoviscidoză adulţi Scleroză laterală amiotrofică Sindrom Prader Willi fibroză pulmonară idiopatică distrofie musculară Duchenne angioedem ereditar Neuropatie optică ereditară Leber Limfangioleiomiomatoză L9 afectare neurologică afectare cardiacă sau formă mixtă medicamente materiale sanitare Total medicamente materiale sanitare Total bolnav adult / copil cu greutate > 40 Kg bolnav copil cu greutate < 40 Kg L10 C0 C1 C2 C3 C4 C5 C6 C7 C8 C9 C10 C11 C12 C13 C14 C15 C16 C17 C18 C19 C20 C21 C22 C23 C24 C25 C26 C27 C28 C29 C30 C31 C32 C33 C34 C35 C36 C37 C38 C39 L11 Alba 0 44163.345 0 0 0 0 0 0 0 0 0 0 0 8707.18 0 0 0 0 0 0 0 0 1228195.59 0 0 0 0 0 0 0 655710.03666667 8049.45 3598.675 12063.6 14829.84 0 726483.74333333 0 0 L12 Arad 0 0 0 0 0 1510173.875 0 0 0 0 0 0 6356.7783333333 65668.95125 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1153962.59 0 991940.97 0 2962.154 0 54008.58625 1109618.91 13716.36 0 20017.44 L13 Arges 0 0 553417.9875 0 146628.11 1660046.7 0 0 0 0 0 0 0 49299.674210526 0 0 0 0 0 0 0 0 868702.858 0 0 0 0 0 0 0 582206.71555556 172111.93222222 3800.5629411765 0 47833.477142857 0 410089.195 0 0 L14 Bacau 69095.695714286 36361.154117647 602411.52 0 0 0 0 0 0 0 0 0 0 89659.68 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 235301.71 335262.06666667 528061.835 3847.5259090909 0 50297.112857143 0 598258.08 0 0 L15 Bihor 147190.54 63044.314444444 0 0 0 0 622304.665 0 93240.484 44158.527857143 0 0 0 70022.976923077 10098.448333333 0 0 0 0 0 0 0 576561.58 0 0 0 0 0 0 0 524909.467 788110.99666667 4425.8335714286 0 61494.88625 1479491.88 69604.356666667 0 0 L16 Bistrita-Nasaud 0 0 0 0 0 0 0 0 0 0 0 0 0 60448.566 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 355668.73333333 0 1461.656 0 56143.504285714 0 2797.09 0 0 L17 Botosani 0 0 0 0 0 0 0 0 0 0 0 0 0 9972.19 0 0 0 0 0 0 0 0 1047734.565 0 0 0 0 0 0 0 200582.30636364 672191.56 3045.12 0 76519.275 0 33565.1 0 0 L18 Brasov 0 0 282906.02 0 0 2677498.3 0 0 84020.741666667 0 0 389124.11 0 20513.5772 0 73256.77 0 0 0 0 0 0 724999.56833333 74326.42 0 0 0 0 1326447.9 0 275561.5204878 301637.39 3103.3804 0 47942.964285714 0 268817.485 160721.33 0 L19 Braila 0 40144.1 0 0 0 1122755.725 0 0 0 0 0 0 0 27550.824117647 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 449410.80769231 573169.64333333 3601.196 11606.01 0 2405454.06 0 183665.52 0 L20 Buzau 0 0 0 0 0 0 0 0 97005.96 0 0 0 0 59261.06 0 0 0 0 0 0 0 0 123548.91 0 0 0 0 0 0 0 319343.7725 785769.5 4295.5377777778 0 23302.47 0 0 182462.34 0 L21 Caras-Severin 0 0 0 1626836.22 0 0 0 0 0 0 0 0 0 93819.03 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 28445.23 3370.1090909091 0 10242.72 2776788.9 11188.36 0 0 L22 Calarasi 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 886496.6975 975841.83 0 0 0 0 150316.41 0 0 L23 Cluj 73230.395877143 50320.509576744 771739.56186667 0 0 0 0 0 64436.794168398 65420.850094979 0 508579.4886458 8523.3547243243 62811.127820133 101214.02821962 73088.5332 0 0 0 426.81070434783 27612.091304348 28038.902008696 956001.08443333 248285.65431 0 0 1059473.39865 77265.66715 813830.7845955 63857.246627 311079.96181818 471971.73222222 2725.0109756098 42892.8 58039.5 0 13985.46 152319.37833333 0 L24 Constanta 104089.235 44066.513529412 506492.08 1080579.02 150090 0 0 0 0 0 0 0 6472.72 54410.072 0 0 0 0 0 0 0 0 635467.24125 0 0 0 0 0 0 0 531837.9 153841.59090909 4046.359375 0 85260.75875 1218280.75 142351.704 0 13344.96 L25 Covasna 0 0 0 0 0 1662640.11 219601.66 0 0 0 0 0 0 48015.45 0 0 0 0 0 0 0 0 224885.555 0 0 0 0 0 0 0 310401.8325 351432.14571429 4866.3225 0 71910.615 0 0 0 0 L26 Dambovita 0 0 0 0 0 764040.93 0 0 0 0 0 0 0 14015.74 0 0 0 0 0 0 0 0 1200955.1175 0 0 0 0 0 0 0 329961.59384615 229170.76125 4264.945 3162.08 22536.24 0 61055.238571429 183665.52 0 L27 Dolj 0 0 330158.9225 395052.4 0 1220011.04 0 0 71164.46 0 0 0 3221.2472727273 108990.52631579 0 0 0 0 0 0 0 0 1189173.66 0 0 0 1294033.6 0 1460616.885 0 322096.62214286 427934.43666667 3520.2058823529 10723.2 24727.853333333 933733.65 0 0 14179.02 L28 Galati 0 37127.576153846 0 0 0 606264.52 0 0 0 0 0 0 0 32307.99 0 0 0 0 0 0 0 0 864842.37 0 0 0 0 0 0 0 279459.718 132581.55 3124.5615 0 84692.153 1109618.91 13859.88 0 0 L29 Giurgiu 0 0 0 0 0 0 1166508.03 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 106462.7 533376.875 8055.0666666667 2118.3533333333 10276.76 0 0 11080.72 0 0 L30 Gorj 0 0 0 0 0 0 0 0 92080.29 0 0 0 0 14718.26 0 0 0 0 0 0 0 0 892082.8425 0 0 0 0 0 0 0 379606.504 23218.82 3442.32 0 56033.835 0 0 0 0 L31 Harghita 48621.605384615 40497.869166667 0 0 0 0 0 0 53573.78 0 0 0 7664.125 54508.619285714 0 0 0 0 0 0 0 0 410208.92 0 0 0 0 0 0 0 8358.7633333333 654681.62 4052.1236363636 0 57371.185 0 761124.19 0 0 L32 Hunedoara 0 0 0 0 0 0 0 0 88447.045 0 0 0 0 71825.007 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1298150.48 0 701661.42571429 0 3439.7992857143 0 69264.208 0 0 0 2224.16 L33 Ialomita 0 50620.745 0 982039.59 0 0 0 0 0 0 0 0 0 12967.47 0 0 0 0 0 0 0 0 669683.74666667 0 0 0 0 0 0 0 79945.665 294995.16 4501.4916666667 0 68884.365 0 0 183665.52 0 L34 Iasi 62660.944375 55017.276842105 408118.00166667 1381791.33 0 0 0 0 81830.777222222 22057.192711864 0 474996.783 10966.844782609 75807.259777778 85042.79 92363.112857143 0 0 0 392.93666666667 11293.603793103 11618.792758621 352441.19666667 0 0 0 1180147.15 377691.487 906235.03714286 68136.544 313268.13076923 534089.44111111 2604.5948148148 0 60894.087142857 0 0 159054.845 11398.82 L35 Maramures 90354.826923077 38845.564545455 0 0 0 0 0 0 37022.01 0 0 678469.41 0 51211.157285714 0 0 0 0 0 0 0 0 940725.19 0 0 0 1066629.05 0 0 183525.065 251802.05833333 540 3642.0589473684 7148.8 53260.401538462 0 770840.07 203671.77 0 L36 Mehedinti 38063.9025 27799.813333333 0 0 0 0 0 0 0 0 0 0 0 53123.966 0 0 0 0 0 0 0 0 985149.72 0 0 0 0 0 0 0 1080151.46 0 4413.2322222222 0 42706.073333333 0 0 0 0 L37 Mures 61725.307647059 44956.447142857 554990.37 1314908.87 0 0 0 0 68795.947777778 33582.049215686 0 581095 6681.0906666667 40433.765833333 0 0 0 0 0 454.05857142857 2328.88 2782.9385714286 816518.70666667 0 0 0 550488.54 0 1078427.51 0 448949.06545455 99531.74 3381.4940740741 0 48816.096666667 182194.86 1068673.505 0 0 L38 Neamt 126660.4475 59881.811666667 723613.24333333 0 0 0 0 0 0 0 0 0 0 44880.64 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 170657.1 402310.72 2771.5133333333 17872 48985.568 0 539113.026 0 10008.64 L39 Olt 0 0 0 0 151102.81 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 861195.615 0 0 0 0 0 0 0 539415.755 551391.47 3399.0411111111 0 106946.31 0 297521.29444444 0 26689.92 L40 Prahova 0 0 0 0 0 0 0 0 0 0 0 0 0 94182.346153846 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 340313.9332 498885.19357143 3591.9913043478 4896.8 60498.768 0 59814.39 20006.25 0 L41 Satu Mare 64648.555 39633.898888889 48470.99 0 0 0 0 0 83739.45 0 0 49014.03 0 35519.09125 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 829559.86666667 355961.18714286 4350.17 0 85587.504285714 0 17607.283333333 0 0 L42 Salaj 0 0 0 0 0 0 0 0 0 0 0 0 0 49757.466666667 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 3782.7685714286 32169.6 24838.686666667 0 71235.876666667 0 0 L43 Sibiu 45423.337142857 31359.85875 0 0 0 0 0 0 77935.405714286 0 0 0 0 70571.096585366 0 70618.376666667 0 0 0 0 0 0 687137.75333333 418223.48666667 0 0 1625301.03 0 0 0 659342.96142857 54280.53 2168.3616666667 0 0 3165554.785 6992.725 0 0 L44 Suceava 63245.895714286 44269.739285714 421821.11 0 0 904126.175 0 0 0 0 1318157.3490476 315174.215 0 36701.807 0 0 0 0 0 0 0 0 1475293.41 0 0 0 476882.41 0 339689.39 0 423058.45461538 230067.63 4188.5390909091 0 85739.878 2774473.86 187088.16363636 0 0 L45 Teleorman 0 0 0 0 0 2343589.48 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1228195.59 0 0 0 0 0 0 0 25619.888 30050.9425 4236.6983333333 0 0 0 0 60820.77 0 L46 Timis 74902.6925 47790.261875 302395.79333333 1036743.82 122321.51 2387289.44 0 0 107470.47807692 40516.430147059 0 1176717.85 0 46652.370340909 64665.06 100408.93142857 0 0 0 91.731111111111 23131.135 23213.693 906506.24823529 0 1204717.51 0 118093.82 201285.035 1126610.2266667 607296.725 231612.84388889 288202.90631579 3428.3776315789 15510.342857143 64617.950869565 0 529415.86 0 5560.385 L47 Tulcea 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 387218.67125 931676.74 2250.725 0 0 2774473.86 0 0 0 L48 Vaslui 0 0 625323.78 0 0 0 0 0 0 0 0 0 0 6796.2 0 0 0 0 0 0 0 0 881787.1 0 0 0 0 0 0 0 266231.8325 25363.35 4898.0038461538 10081.82 122310.39 0 0 243684.27 0 L49 Valcea 0 0 0 0 0 0 0 0 0 0 0 0 0 49510.71 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 691410.19 271074.885 3774.7816666667 0 40368.63 0 8391.28 0 0 L50 Vrancea 0 0 478407.92333333 0 0 0 0 0 0 0 0 0 0 67751.701666667 0 0 0 0 0 0 0 0 741293.46 0 0 0 0 0 372388.37 0 479264.54142857 0 4413.225 0 117189.03 0 336661.0175 0 11120.8 L51 Bucuresti 70764.788647343 52477.68443662 364155.66 477778.46 0 1105023.12 0 0 51646.082272727 48376.919825581 821167.3275 465045.76913043 6941.9195689655 39254.557011952 69618.3 51637.151803279 0 35474.78 35474.78 780.55285714286 11678.833928571 12459.387142857 1116146.8670543 212769.51909091 1959722.62 2219356.85 883097.51103448 196562.98555556 1028548.48875 260270.03 334161.00555556 266566.54757576 2948.5588888889 6920.9825 64305.833088235 1406477.61 257781.85272727 121240.55 8340.545 L52 Ilfov 0 0 0 0 0 0 0 0 0 0 0 0 0 20952.745 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 115462.004 20965.645 926.67 0 66817.48 0 40501.255 0 0 L53 AOPSNAJ 67889.83512 42100.7395 500533.00181818 1753764.65 0 0 0 0 94729.182962903 11682.31 0 303018.46333333 0 57162.293423913 0 0 0 0 0 0 0 0 825503.58857143 0 0 0 0 0 0 0 211880.69254545 216696.08304348 2570.9937810945 8586.4381818182 46483.656666667 1206210.82125 250759.51931034 91765.911666667 12749.175714286 L54 Total 75187.554627853 48429.916496056 431150.6403122 1131362.0227273 142535.6075 1490256.541875 657679.755 0 73341.873195726 47746.279537386 1238638.9456 480883.18577024 7407.7123559471 53126.228466791 71174.704390921 62137.792408791 0 35474.78 35474.78 495.67688131868 15847.561546392 16312.578105155 971786.36560444 245793.68955318 1456385.88 2219356.85 928862.46435581 293787.65955143 1011968.2102089 189433.94523243 320218.13821963 289463.38993994 3272.665871766 10824.91372093 57616.532367758 1572182.7948 265928.03798611 140164.19166667 11981.318571429 L55 Total/CNP 76519.617603543 48883.592528806 543913.11547077 1131362.0227273 142535.6075 1490256.541875 657679.755 0 74279.149530495 48177.536255788 1238638.9456 480883.18577024 7440.4898442478 75168.663631894 71174.704390921 62137.792408791 0 35474.78 35474.78 495.67688131868 15847.561546392 16312.578105155 1037084.2636885 245793.68955318 1456385.88 2219356.85 974172.82847073 293787.65955143 1060157.1725998 189433.94523243 464857.73205314 387113.69016064 3936.941759134 12580.305135135 68896.877560241 1637690.41125 290103.31416667 175205.23958333 13978.205 L63